Epidermolysis Bullosa Info & Awareness
Thick Skinned by Dan Cogliano About the Author Dan Cogliano was born with a condition (yes, Epidermolysis Bullosa) that in some people makes even the touch of another human or drink from a glass of water a potential cause for medical treatment. But Dan’s perseverance in the face of this malady paid off big time. First, as an…
For more information or to Order the book, simply click on the title. Jonny Kennedy: The Story of the Boy Whose Skin Fell Off (Paperback) by Roger Stutter (Author), Nell McAndrew (Foreword) Jonny Kennedy was the star of the unforgettable Emmy award-winning documentary The Boy Whose Skin Fell Off. He was an extraordinary character determined…
For more information or to Order the book, simply click on the title. Unconditional ~ Uncensored (Paperback) by Marybeth Sheridan An unflinching personal memoir of a mother’s journey as she discovers her spirituality and strength while watching her child endure a devastating disease called Epidermolysis Bullosa. Her journey takes her through the twists and turns…
This is my book!! It’s basically a compilation of columns I wrote in the early to mid 2000s. “Special Mommy Chronicles” was a featured site in Exceptional Parent Magazine‘s February 2003 issue. It was also featured as an on-going column in the Mahoning Valley Parent Magazine of Ohio from April 2003 to September 2004. Over twenty…
A Different Kind of Perfect: Writings by Parents on Raising a Child with Special Needs (Paperback) by Cindy Dowling (Author) From Publishers Weekly While all parents worry about their offspring, parents of children with special needs face a unique set of challenges that is served well by this touching collection. The conflicting emotions and frustrating…
For more information or to Order the book, simply click on the title. Living with Epidermolysis Bullosa (Paperback) Compiled by Silvia Corradin, edited by Brenda G. Living with Epidermolysis Bullosa has first-hand accounts written by parents and patients who are living or have lived with EB, and was compiled to help people in general understand how…
