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Epidermolysis Bullosa Info & Awareness

EB Info World

Epidermolysis Bullosa Info & Awareness

  • Home
  • Welcome to EB Info World
  • About EB & FAQ
    • Information about EB
    • About EB Simplex
    • About EB Junctional
    • About EB Dystrophic
    • Clinical Pictures
      • Simplex
      • Junctional
      • Dystrophic
    • Articles
      • Bandaging instructions
    • Links
    • Disclaimer
  • EB Families Corner
    • Share Your Story!
    • Personal Stories
    • Food & Recipes
    • Hints & Tips
  • EB Patient’s Photos & Memorials
    • Memorials
    • Simplex
    • Junctional
    • Dominant Dystrophic
    • Recessive Dystrophic
  • EB Awareness
    • Quotes/Memes
    • Link To Us!
    • Blinkies
    • Books
    • EB Awareness Wallpapers
    • Free Incredimail Letters

EB Families Corner

    • Meet the Patients (this website featured Patients in the past)
    • Meet the Parents (this website featured Parents in the past)
    • Memorials (submitted to this site from 1997 ’til present on our FACEBOOK page!)
    • View photos of Children with EB (submitted to this site from 1997 ’til present on our FACEBOOK page!) Simplex ~ Junctional ~ Dominant Dystrophic ~ Recessive Dystrophic

 

(Visited 1,937 times, 12 visits today)
  • Home
  • Welcome to EB Info World
  • About EB & FAQ
    • Information about EB
    • About EB Simplex
    • About EB Junctional
    • About EB Dystrophic
    • Clinical Pictures
      • Simplex
      • Junctional
      • Dystrophic
    • Articles
      • Bandaging instructions
    • Links
    • Disclaimer
  • EB Families Corner
    • Share Your Story!
    • Personal Stories
    • Food & Recipes
    • Hints & Tips
  • EB Patient’s Photos & Memorials
    • Memorials
    • Simplex
    • Junctional
    • Dominant Dystrophic
    • Recessive Dystrophic
  • EB Awareness
    • Quotes/Memes
    • Link To Us!
    • Blinkies
    • Books
    • EB Awareness Wallpapers
    • Free Incredimail Letters

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Worldwide EB Organizations

  • Children's Skin Disease Foundation
  • Cure EB
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  • Epidermolysis Bullosa News
  • The Butterfly Fund
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Butterfly Child: A Mother’s Journey

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Butterfly Child

Follow Silvia's journey from the stillbirth of her first son, followed by a miscarriage, and the first 18 years of her son Nicky's life with Recessive Dystrophic Epidermolysis Bullosa.

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EB Info World was Created on 11/20/1997 - Copyright 2020
Disclaimer

About Me

Hi!
I'm Silvia and I am an EB mom.
I was born and grew up in Italy, but now live in Southern California (USA).
I am Mom to 3 boys, 1 in heaven, 2 on earth.
My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted.

I started this website when Nicky was just an infant because I could not find any information about EB, so anything I came across I posted for the benefit of other parents and it grew from there. I still run this website (and its FB page) because I never stopped looking for information!
For more about me, you may visit my personal blog.
Thank You for visiting!

Worldwide EB Organizations

  • Children's Skin Disease Foundation
  • Cure EB
  • Debra International
  • Debra of America
  • EB Research Partnership
  • EBMRF
  • Epidermolysis Bullosa News
  • The Butterfly Fund

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