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Epidermolysis Bullosa Info & Awareness

EB Info World

Epidermolysis Bullosa Info & Awareness

  • Home
  • Welcome to EB Info World
  • About EB & FAQ
    • Information about EB
    • About EB Simplex
    • About EB Junctional
    • About EB Dystrophic
    • Clinical Pictures
      • Simplex
      • Junctional
      • Dystrophic
    • Articles
      • Bandaging instructions
    • Links
    • Disclaimer
  • EB Families Corner
    • Share Your Story!
    • Personal Stories
    • Food & Recipes
    • Hints & Tips
  • EB Patient’s Photos & Memorials
    • Memorials
    • Simplex
    • Junctional
    • Dominant Dystrophic
    • Recessive Dystrophic
  • EB Awareness
    • Quotes/Memes
    • Link To Us!
    • Blinkies
    • Books
    • EB Awareness Wallpapers
    • Free Incredimail Letters

EB Families Corner

    • Meet the Patients (this website featured Patients in the past)
    • Meet the Parents (this website featured Parents in the past)
    • Memorials (submitted to this site from 1997 ’til present on our FACEBOOK page!)
    • View photos of Children with EB (submitted to this site from 1997 ’til present on our FACEBOOK page!) Simplex ~ Junctional ~ Dominant Dystrophic ~ Recessive Dystrophic

 

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  • Home
  • Welcome to EB Info World
  • About EB & FAQ
    • Information about EB
    • About EB Simplex
    • About EB Junctional
    • About EB Dystrophic
    • Clinical Pictures
      • Simplex
      • Junctional
      • Dystrophic
    • Articles
      • Bandaging instructions
    • Links
    • Disclaimer
  • EB Families Corner
    • Share Your Story!
    • Personal Stories
    • Food & Recipes
    • Hints & Tips
  • EB Patient’s Photos & Memorials
    • Memorials
    • Simplex
    • Junctional
    • Dominant Dystrophic
    • Recessive Dystrophic
  • EB Awareness
    • Quotes/Memes
    • Link To Us!
    • Blinkies
    • Books
    • EB Awareness Wallpapers
    • Free Incredimail Letters

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Worldwide EB Organizations

  • Children's Skin Disease Foundation
  • Cure EB
  • Debra International
  • Debra of America
  • EB Research Partnership
  • EBMRF
  • Epidermolysis Bullosa News
  • The Butterfly Fund
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Butterfly Child: A Mother’s Journey

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Butterfly Child

Follow Silvia's journey from the stillbirth of her first son, followed by a miscarriage, and the first 18 years of her son Nicky's life with Recessive Dystrophic Epidermolysis Bullosa.

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EB Info World was Created on 11/20/1997 - Copyright 2024
Disclaimer

About Me

Hi!
I'm Silvia and I was an EB mom.
I was born and grew up in Italy, but now live in Southern California (USA).
I am Mom to 3 boys, 2 in heaven, 1 on earth.
My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who had the Recessive Dystrophic form of Epidermolysis Bullosa. He fought valintly and bravely for 25 years and tragically passed in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted.

I started this website when Nicky was just an infant because I could not find any information about EB, so anything I came across I posted for the benefit of other parents and it grew from there. I still run this website (and its FB page) because I never stopped looking for information!
For more about me, you may visit my personal blog.
Thank You for visiting!

  • Home
  • Welcome to EB Info World
  • About EB & FAQ
    • Information about EB
    • About EB Simplex
    • About EB Junctional
    • About EB Dystrophic
    • Clinical Pictures
      • Simplex
      • Junctional
      • Dystrophic
    • Articles
      • Bandaging instructions
    • Links
    • Disclaimer
  • EB Families Corner
    • Share Your Story!
    • Personal Stories
    • Food & Recipes
    • Hints & Tips
  • EB Patient’s Photos & Memorials
    • Memorials
    • Simplex
    • Junctional
    • Dominant Dystrophic
    • Recessive Dystrophic
  • EB Awareness
    • Quotes/Memes
    • Link To Us!
    • Blinkies
    • Books
    • EB Awareness Wallpapers
    • Free Incredimail Letters

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