As always, if you do not want your photos posted, all you have to do is ask and they will be deleted. If you would like your photos added or updated, just send me an email at ebmomma at gmail.com (sorry, I am trying to avoid spammers!) and attach the photo you would like me to add with the following info: Full name of the patient, birth date, form of EB, where the family lives, and names of siblings (if any) and parents, along with any comment you would like to add.
Children (and adults!) with Dominant Dystrophic EB
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This is Katie, she was born on February 28, 2004. Katie has the dominant dystrophic form of EB. She loves her mommy, daddy, and George the dog. Katie likes to play on her bean bag, going for walks in the stroller, and singing into Daddy's microphone. She enjoys watching Blues Clues while Mommy bandages her boo boos. God Bless!!
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Sebastain Micheal Hinkle was born on April 25, 1992 with mild dominant dystrophic EB. He is a very active child loves to play out side and his video games, though he would love to play sports, but is limited to what he can do. This site has really helped him, he always felt out of place and he was the only one who had this disorder though I (mom), have EB also, that never help him, but now that he knows that other children his age have EB, I think it has helped him alot. Thank you so much for doing this wonderful site. Sebastian has two siblings, an older sister (13) and brother (9) your all in prayers thanks.
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Anne-Marie Tanksley Howell (on the left) was born on May 26th, 1999. Heather Raine Tanksley (on the right) was born October 22, 2002. In this picture she was 5 days old, at birth she weighed 7lb 10.4oz and was 19 inches long. Both girls have the Dominant Dystrophic form of EB and live with their mommy Misty.
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Taylor Emmalee Marcoullier was born December 11, 1996. Taylor is 6 years old now. She attends Kindergarten, is involved with Daisy Girl Scouts, and takes Ballet classes. We live in Palmyra, PA. Taylor has the Dominant Dystrophic form EB.
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Jonas Matson was born in February 1998. He has the Dominant Dystrophic form of EB and lives in Vancouver, Washington along with mom and dad: Donny and Kim, four older siblings and one younger one.
