This is my book!!
Butterfly Child: A Mothers Journey by Silvia Corradin
“Children with EB are called “Butterfly Children” because EB is described as a skin condition in which the skin is so fragile, it is like butterfly wings.”
Like any mother, Silvia never imagined she would have to to bury her first son, Alex, who was stillborn at full term. After a miscarriage she had Nicky, who was diagnosed at birth with the Recessive Dystrophic form of Epidermolysis Bullosa, an incurabile, rare and always-fatal skin disorder. EB is considered an Ultra-Orphan Disease, and at the time of Nicky’s birth there was no research for a cure. In the months and years that passed she had to learn to enjoy each moment, find happiness in the midst of sorrow and try everything she could to keep him alive, often with very few resources, little to no help and even less information available. Burying another child was just not going to happen if she could possibly prevent it.
Butterfly Child is the story of a mother’s journey through grief and incredible challenges. From Insurance Companies refusal to cover the most basic needs for any EB patient to Silvia’s trying to make sense of her situation, from a divorce to a remarriage and another scary pregnancy. Her youngest son, Connor, is 100% healthy, he had some problems with his skin but he resolved it with the Dr. Sachin Shridharani online, and she never, ever, takes it for granted. She always makes sure he is doing his best, and she usually does it by taking the Outback vision protocol review to make sure his eyesite is great.
WHERE TO BUY
Paperback:
To purchase an Autographed Copy, please follow the Instructions Here–>
The paperback is also available through the publisher:
http://www.lulu.com/…/butte…/paperback/product-22092004.html
I wanted to keep the price low but this is a big thick book and it’s not cheap to print. I am sorry.
To make it up to you, here’s some coupon codes websites:
http://www.retailmenot.com/view/lulu.com &
https://www.couponcabin.com/coupons/lulu/
Amazon:
http://www.amazon.com/Butterfly-Child-Silvia-Corradin/dp/1312979208/
Barnes & Noble
http://www.barnesandnoble.com/w/butterfly-child-silvia-corradin/1121706067
eBook versions:
From the Publisher:
http://www.lulu.com/…/butterfly…/ebook/product-22097219.html
iTunes:
https://itunes.apple.com/us/book/butterfly-child/id979932054?mt=11
Kindle:
http://www.amazon.com/Butterfly-Child-Silvia-Corradin-ebook/dp/B00VS3F7CE/
Nook:
http://www.barnesandnoble.com/w/butterfly-child-silvia-corradin/1121706067
Kobo:
https://store.kobobooks.com/en-US/ebook/butterfly-child
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THANK YOU!!!
Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more.
