Author Archives: admin

EB Awareness Tags by Silvia Pt 3

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Here’s part 3 of more EB Awareness Tags I made. Please feel free to share and use them for Epidermolysis Bullosa Awareness in any way you like. Click on the image for a bigger version, right click to save. Love & Light! Silvia

EB Awareness Tags By Wayne Lemos part 8

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A super-friend from India, who is a graphic designer and an amazing helping hand for many charities, took the time to do quite a few EB Awareness Tags for this website. I’ve posted quite a few on our Facebook page, and I am now posting them on this blog a few at a time as…

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Everyone Belongs

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For more information or to Order the book, simply click on the title. Everyone Belongs by Dennis Vanasse M. ED. Meet Ryan. He is just like you and me, except that he suffers from a rare skin disorder called EB. Because of this disorder, Ryan experiences painful blisters, his skin peels off, and infections occur…

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EB Awareness Tags by Silvia Pt 2

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Here’s part 2 of more EB Awareness Tags I made earlier this year. Please feel free to share and use them for Epidermolysis Bullosa Awareness in any way you like. Click on the image for a bigger version, right click to save. Love & Light! Silvia

EB Awareness Tags By Wayne Lemos part 7

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A super-friend from India, who is a graphic designer and an amazing helping hand for many charities, took the time to do quite a few EB Awareness Tags for this website. I’ve posted quite a few on our Facebook page, and I am now posting them on this blog a few at a time as…

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EB Awareness Tags by Silvia Pt 1

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Here’s a few tags that I made earlier this year you can use any way you like. Click on the image to load the bigger version (if any). Feel free to save and share! Love & Light! Silvia

EB Awareness Week 2013

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Somebody once said that even though EB is rare, each child suffers enough for an entire village. It’s true. There are other conditions, even more rare than EB that get more funding, more attention, more care, while many EB families, dealing with children that suffer immensely, fall through the cracks. Can you help? What you…

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Without Awareness There Is No Hope

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How many times have we seen these graphics or posts stating that ‘liking a picture’ on Facebook does nothing? Not only have I seen images stating this negative attitude, but people have, indeed wrote this BS under my son’s photo as it was circulating Facebook several months ago, all the while collecting an ASTOUNDING 987,000…

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