How many times have we seen these graphics or posts stating that ‘liking a picture’ on Facebook does nothing? Not only have I seen images stating this negative attitude, but people have, indeed wrote this BS under my son’s photo as it was circulating Facebook several months ago, all the while collecting an ASTOUNDING 987,000 likes!
PLEASE CLICK on the picture –>>OR HERE<<– to help Nicky get to a COOL million! Like and Share!!!
So, you still think ‘liking’ a photo does nothing? Consider this: EB is rare. There are other conditions out there, such as Progeria (where a child becomes ‘old’ before their time) that are much more well known that EB, yet, extremely rare, definitely more rare than EB. A cure may well come sooner for them than for EB children simply because they have more Awareness. Awareness of different troubles in this world, and less known conditions can be shared to people who can help. By liking one picture, you are spreading awareness to your friends. Even if just one of your friends decides to give $1 to your neighborhood shelter or to an EB organization, a chance is made to make a difference. And what if your friend is a well known actor, doctor, photographer, film-maker or just someone who knows someone? A real difference can be made.
This is what happened when this photo went around. I received messages from all over the world, donations were made to the various EB organizations, even if a small dent was made, it was a dent.
Of course, even though this photo was posted on an official EB facebook page, so obviously legit, heck, it’s MY son, there were also those who reported it as ‘disgusting’, ‘fake’, ‘disturbing’, ‘annoying’, many tried to get me to delete it because they didn’t “like it”. People posted how stupid it was and what idiots we were. Any negative post was promptly deleted and the user banned from the page. I am sorry, but I am not going to stand for negativity and for the close-minded. My son is suffering, we need a cure, we need it now. We need hope, and we can’t have hope without awareness. You don’t like it? Too bad.
So, next time you see a photo circulating like the one of my son… look at it. REALLY look at it. See what the source is. Have you ever heard of the condition? Google it if you are paranoid about liking and sharing a photo of a sick child. If you have any compassion left, the only thing to do, which will cost you nothing, is spread the word. Clearly, it’s the least you can do.
EB Awareness is the key to a cure.
Blessings,
Silvia
Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more.
