Epidermolysis Bullosa Info & Awareness
I thought I would have to teach my child about the world. It turns out I have to teach the world about my child with Epidermolysis Bullosa Adults with Epidermolysis Bullosa once were children with EB. They too, need understanding, acceptance and awareness. Children with Epidermolysis Bullosa’s spirits are killed every day because of society’s…
EB is a horrible disease, a disfiguring disease that kids are born with and it’s unrelenting suffering from the beginning til the end. It’s lifing in bandages, living on morphine drip. It’s horrendous. ~Ian Ziering
There is no perfect way to be an EB parent. You just do the best you can with all you’ve got. ~Support Epidermolysis Bullosa Awareness
My heart belongs to my child with EB Epidermolysis Bullosa Awareness
In loving memory of every EB patient who has lost their battle against EB and the ones who continue to conquer it! Support Epidermolysis Bullosa Awareness
Always Hope Epidermolysis Bullosa Awareness
Of course I can change bandages, deal with insurance companies, lift wheelchairs into my trunk, handle dozens of medications, fix g-tube machines and keep up with my child’s appts with all his doctors… while baking cupcakes, helping with homework and make sure we don’t run out of mil, I just rather stay away from the…
If you support children and adults with EB (Epidermolysis Bullosa) Please *Like* this picture. We NEED your support!!
Beagle Hugs for EB Kids – Please support Epidermolysis Bullosa Awareness
