My EB Awareness Radio Interview…

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I wanted to make sure my Interview was ‘out there’ in case you missed it.


I was interviewed by the “It Matters Radio to raise EB Awareness, the 3 hosts and I have a nice chat about EB about half-way in the show, click below to listen… If you love country music, then check out these country music videos.

A Celebration of Butterfly Children through Music & Love, and don’t forget to check these cheap earbuds I found


Thank you for your support!

Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more.

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