Skip to main content

Epidermolysis Bullosa Info & Awareness

EB Info World

Epidermolysis Bullosa Info & Awareness

Home
Welcome to EB Info World
About EB & FAQ
EB Families Corner
EB Patient’s Photos & Memorials
EB Awareness

Always Hope ~ Epidermolysis Bullosa Awareness

26 Feb 2017 by admin

0 Comment

Always Hope
Epidermolysis Bullosa Awareness

(Visited 205 times, 5 visits today)

eb awareness hope

Post navigation

Keep Calm for EB Awareness

Search for:

Home
Welcome to EB Info World
About EB & FAQ
EB Families Corner
EB Patient’s Photos & Memorials
EB Awareness

Like EB Info World on Facebook!

We’re Social!

Worldwide EB Organizations

Children's Skin Disease Foundation
Cure EB
Debra International
Debra of America
EB Research Partnership
EBMRF
Epidermolysis Bullosa News
The Butterfly Fund

Butterfly Child: A Mother’s Journey

Butterfly Child

Follow Silvia's journey from the stillbirth of her first son, followed by a miscarriage, and the first 18 years of her son Nicky's life with Recessive Dystrophic Epidermolysis Bullosa.

My Other Books

Trending

Free EB Awareness Incredimail Letters
Views (151)
EB Awareness Blinkies
Views (144)
EB Patients’ Favorite Foods
Views (114)
EB Is Genetic. Yes, It’s True!
Views (109)
Wrapping Hands & Arms The ABC Way
Views (78)

EB Info World was Created on 11/20/1997 - Copyright 2024
Disclaimer

About Me

Hi!
I'm Silvia and I was an EB mom.
I was born and grew up in Italy, but now live in Southern California (USA).
I am Mom to 3 boys, 2 in heaven, 1 on earth.
My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who had the Recessive Dystrophic form of Epidermolysis Bullosa. He fought valintly and bravely for 25 years and tragically passed in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted.

I started this website when Nicky was just an infant because I could not find any information about EB, so anything I came across I posted for the benefit of other parents and it grew from there. I still run this website (and its FB page) because I never stopped looking for information!
For more about me, you may visit my personal blog.
Thank You for visiting!

Home
Welcome to EB Info World
About EB & FAQ
EB Families Corner
EB Patient’s Photos & Memorials
EB Awareness

Shop the EB Awareness Store!

Get in Gear! There are always new items in the Gift Shop for EB awareness

We’re Social!

Categories

Articles
Bandaging instructions
Blog
Books
EB Awareness
Food & Recipes
Hints & Tips
Information about EB
Personal Stories
Quotes/Memes

Meta

Log in
Entries feed
Comments feed
WordPress.org

© 2024 Silvia Corradin