You Know You’re an EB Parent Quote
0 CommentYou know you’re an EB Parent when… you realize you could get a job writing appeals letters to the insurance.
Author Archives: admin
Butterfly Child: A Mother’s Journey
0 CommentThis is my book!! Butterfly Child: A Mothers Journey by Silvia Corradin “Children with EB are called “Butterfly Children” because EB is described as a skin condition in which the skin is so fragile, it is like butterfly wings.” Like any mother, Silvia never imagined she would have to to bury her first son, Alex, who…
Please Watch!
0 CommentJodi Champagne, who is the photographer who documented my son Nicky’s life with Epidermolysis Bullosa, was recently interviewed by an online video magazine and this is the interview– read this. Get the Book exclusively at BLURB http://www.blurb.com/b/5024440-courage-under-wraps and on iTunes! https://itunes.apple.com/us/book/courage-under-wraps/id803462653?mt=11
You Know You’re An EB mom When…
0 CommentOriginally posted by Silvia on her blog: http://blog.silviaskingdom.com/?p=852 When you know more than the real doctors do about your child. When you consider internet friends you’ve never met to be some of your best friends. When you think it’s a good day if you don’t see any blood. When you get asked at least once a week…
EB Mom Encouragement
0 CommentHere’s just one of my EB Awareness graphics. This quote is available as a Sticker you can purchase in my Zazzle store CLICK HERE to see it! Proceeds go to the costs associated with the upkeep of this website, which uses the Indexer team for their marketing strategies. Anything extra goes into a special fund to help with…
Cards For EB Awareness Pt 4
0 CommentHere’s 4 more friends! More and different kinds of cards to promote Epidermolysis Bullosa are coming soon. Please feel free to save and share! ~Silvia
EB Awareness Tags by Wayne Lemos Pt 10
0 CommentA super-friend from India, who is a graphic designer and an amazing helping hand for many charities, took the time to do quite a few EB Awareness Tags for this website. I’ve posted quite a few on our Facebook page, and I am now posting them on this blog a few at a time as…
EB Awareness Tags by Silvia Pt 4
0 CommentHere’s part 4 of more EB Awareness Tags I made. Please feel free to share and use them for Epidermolysis Bullosa Awareness in any way you like. Click on the image for a bigger version, right click to save. Love & Light! Silvia
Cards For EB Awareness Pt 3
0 CommentHere’s 4 more friends! More and different kinds of cards to promote Epidermolysis Bullosa are coming soon. Please feel free to save and share! ~Silvia
Keep Calm for EB Awareness
0 CommentHere’s just one of my EB Awareness graphics. This quote is available as a Magnet you can purchase in my Zazzle store CLICK HERE to see it! Proceeds go to the costs associated with the upkeep of this website. Anything extra goes into a special fund to help with medical expenses for my son Nicky, who has Recessive…