Epidermolysis Bullosa Info & Awareness
Written by an Anonymous RDEB Patient I have had these issues since birth and have tried a myriad of medications that have been prescribed or suggested by prior physicians. The list includes mineral oil, senna products (liquid and herbal tea) ex-lax, milk of magnesia, dulcolax, docusate sodium, Metamucil, Miralax, Benefiber and many others that I…
Collected by Melanie (Logan) England unless otherwise noted We all know how hard it is for EB patients to get enough calories and protein into their diet, especially when they have esophageal complications and require a soft diet. Here are a few recipes that have worked well in our home. Homemade Spaghetti-Os 2 cups cooked…
Diet for Epidermolysis Bullosa For children over 1 year This is the transcript of a little booklet distributed by DEBRA UK called “Diet for Epidermolysis Bullosa”. Thank you Brenda for typing this for us! đŸ™‚ Nutrition in Epidermolysis Bullosa Children with the more severe forms of EB have problems consuming an adequate food intake. This is…
BY: Lesley Haynes SRD The latest version of this booklet is available in PDF format at the Debra International website. You can download it HERE. Webmaster note: Although this was written specifically for Dystrophic EB by Registered Dietitian Lesley, it has been pointed out to me that it is helpful for babies and toddlers of…
