Epidermolysis Bullosa Info & Awareness
Many patients with EB have Facebook pages to gather support, prayers and to share their struggles and achievements. My son does as well. I didn’t make it, a dear photographer friend, who is documenting his life, made it for us. I scoured Facebook for other pages and this is the list I came up with.…
Apparently the daily life of my son is offensive to Facebook and whoever ‘reported’ this photo to Facebook as a violation of the statement of rights and responsabilities. Huh? No, this photo isn’t pretty. That’s the point of posting it, isn’t it? To SHOW what EB is really like. To show the suffering EB patients endure. We’ve…
