Epidermolysis Bullosa Info & Awareness
Today we celebrate those caring for loved ones with Epidermolysis Bullosa. I love someone with Epidermolysis Bullosa. A negative society will affect my quality of life more than Epidermolysis Bullosa will. Get educated, be inspired. I love my daughter with Epidermolysis Bullosa I love my son with Epidermolysis Bullosa. Keep Calm, I’m and EB Mom. …
I thought I would have to teach my child about the world. It turns out I have to teach the world about my child with Epidermolysis Bullosa Adults with Epidermolysis Bullosa once were children with EB. They too, need understanding, acceptance and awareness. Children with Epidermolysis Bullosa’s spirits are killed every day because of society’s…
I am a child with Epidermolysis Bullosa My skin is extremely fragile. My body is wrapped in gauze to protect my skin and allow the wounds to heal. My condition is genetic and is not contagious. Most importantly, I need your unconditional love, your support & a CURE.
Wanted: Cure for Epidermolysis Bullosa while our children are still alive. Reward: Priceless
You know you’re an EB Parent when… you realize you could get a job writing appeals letters to the insurance.
Jodi Champagne, who is the photographer who documented my son Nicky’s life with Epidermolysis Bullosa, was recently interviewed by an online video magazine and this is the interview– read this. Get the Book exclusively at BLURB http://www.blurb.com/b/5024440-courage-under-wraps and on iTunes! https://itunes.apple.com/us/book/courage-under-wraps/id803462653?mt=11
Originally posted by Silvia on her blog: http://blog.silviaskingdom.com/?p=852 When you know more than the real doctors do about your child. When you consider internet friends you’ve never met to be some of your best friends. When you think it’s a good day if you don’t see any blood. When you get asked at least once a week…
Here’s 4 more friends! More and different kinds of cards to promote Epidermolysis Bullosa are coming soon. Please feel free to save and share! ~Silvia
Here’s 4 more friends! More and different kinds of cards to promote Epidermolysis Bullosa are coming soon. Please feel free to save and share! ~Silvia
