Tag Archives: Bone Marrow Transplants

The heart of research…finding a cure for EB

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By Christie Zink From her Blog: I Refuse EB *************************** Epidermolysis Bullosa…I remember the first time I ever came across those words.  I did not realize at the time that those words would impact me so profoundly.  It was late at night and I happened to see the link to a blog on a Facebook page that I had started…

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My take-away from the Debra’s PCC in Orlando – Part 4

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Good Morning everyone! Today I will continue with the talks from Dr. Jakub Tolar about PIP Stem Cells to optimize EB treatment and Dr. Anna Bruckner with Anemia. To see the slides in an enlarged version, simply click on the photo. Personalized Induced Pluripotent Stem Cells for Optimizing EB Treatment This talk was presented by…

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