Epidermolysis Bullosa Info & Awareness
Most patients with Recessive Dystrophic Epidermolysis Bullosa are also Anemic. Anemia in EB is caused by many factors and can become very severe if not treated. Anemia means not having enough red cells and hemoglobin. This can occur because they’re not produced, or are being lost and destroyed. Anemia can lead to low oxygen levels,…
Where to Start, Where to Stop and What the Future May Hold By Daniel Mark Siegal MD, MS Associate Professor, Vice Chair and head of Dermatologic Surgery, Department of Dermatology SUNY@Stony Brook INTRODUCTION: Skin cancer, predominantly Squamous cell Carcinoma (SCC), is a scourge of RDEB. This is a problem that begins with the first blister,…
By Grammy Shirley December 23, 2002 This is information regarding Jennifer Deprizio’s many hand surgeries. Before Jennifer came to live with me in 1997, she had been through many hand surgeries to open the digits and to keep her hands from mittening. Jennifer’s hand before surgery None of them worked and the reason for this…
by Silvia Corradin My story on how I came to care for my son started, as with all RDEB babies, when he was born. Since he was c-section he came out perfect except for some problem with his mouth. The nurses sucked all his skin out of his mouth when they did the routine suctioning…
