Gabriel’s Story

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When we found out we were pregnant we were so excited, we had been trying for 6 months. After a typical 9 months of a perfectly normal pregnancy, I gave birth to a beautiful 7lb baby boy which we named Gabriel, after the Angel in God’s Army. Little did we know  what a soldier we had and how fitting this name was for him.

Gabriel was prefect. We noticed he was missing skin on his wrist and on his ankle. The Doctor assured me it was nothing to worry about, he must have hurt himself during the birthing somehow. We were also concerned because his circumcision looked abnormal. The skin left looked raw. The Doctor told us it was fine. Two days later we were released from the hospital to go home and introduce him to his big sister Maddison. Everything was normal and fine for about a week. The missing skin had healed and there was nothing to indicate anything unusual. However, he started to get big blood blisters on the heels. Both heels were solid blister. We discussed it with his Doctor when we took him to his 2 week appointment. The Doctor had no clue. Maybe his skin is just soft and he’s blistering when he kicks was the Doctor’s assumption. Come back next week and we will see how it looks.

We went back and it was still constant blistering. Confused and with no idea why Gabriel was blistering, he referred us to a Dermatologist at Children’s Hospital. They had set the appointment for 3 months later. I called and begged for an earlier appointment. My son was blistering and we had no clue why. He was hurting and I couldn’t fix it. They finally agreed. At a month old we went and saw the Dermatologist. After looking at him she said it looked like Epidermolysis Bullosa. I had no idea what she was talking about. I just looked at her with total confusion. They decided to try a test. They took a pencil and spun the eraser to see if they could induce a blister. That was a fail since it just sheared the skin off altogether, so they cut a piece of skin off to send for testing to confirm. She gave us a pamphlet and told us not to Google it.

Being me, the first thing I did was Google it as soon as I got to the car. The more I read the more scared I was. The more pictures I saw, the harder I cried. Telling our family, it was hard to