Having a child with EB is tough. You can survive if you can let attitudes & comments from others roll off you, knowing that your journey as an EB parent is important.
You are your child’s voice, their nurse, their advocate but most of all their parent, their heart & soul.
YOur journey will be tough, but the smallest milestones are huge triumphs & you will experience many heartfelt rewards. Rewards that you will hold in your heart forever.
You are an EB parent and YOU ARE AMAZING! Be kind to yourself!

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