Kidowed is an e-book available on Amazon.com about a mother who had two children afflicted with the fatal Junctional-Herlitz subtype of Epidermolysis Bullosa. Her story is one of tragedy and loss, but also hope, victories, and humor. The book was originally written as a journal, and has remained in that format. The author, Jessica Kenley, is extremely candid about her thoughts and experiences at the time she was writing the book.
Jessica Kenley was born in Buffalo, New York and now lives in Coudersport, Pennsylvania. She is a licensed veterinary technician and has one surviving child from a marriage subsequent to her first two children’s father. Her remaining child is EB-free and at the time of publication is 2 magnificent years old.
Kidowed, by Jessica Kenley
Book Description
In this book you’ll find the the struggles, sorrows, and triumphs of the author after she has two children with a rare and universally fatal genetic disease. As she travels through her hellish journey, you will experience unexpected humor, endless love, and learn how strong one family can be while they walk beside her.
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http://www.amazon.com/gp/feature.html/ref=sv_kstore_1/187-4416743-3286369?ie=UTF8&docId=1000493771