Category Archives: EB Awareness

My EB Awareness Radio Interview…

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I wanted to make sure my Interview was ‘out there’ in case you missed it. I was interviewed by the “It Matters Radio to raise EB Awareness, the 3 hosts and I have a nice chat about EB about half-way in the show, click below to listen… If you love country music, then check out these…

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Courage Under Wraps

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For the past year my new friend and fabulous photographer Jodi Champagne, has been documenting my son’s life as it is. My son’s name is Nicholas Zahorcak, we call him ‘Nicky’. He was diagnosed shortly after birth with the Recessive Dystrophic form of Epidermolysis Bullosa. Jodi photographed us doing bandage changes, during trips to the various…

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EB Awareness Tags By Wayne Lemos part 5

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A super-friend from India, who is a graphic designer and an amazing helping hand for many charities, took the time to do quite a few EB Awareness Tags for this website. I’ve posted quite a few on our Facebook page, and I am now posting them on this blog a few at a time as…

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Raising Our Voice

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As a parent of a child with a Rare Disorder, a condition most Doctors have only heard about in passing in Medical School, I’ve always known how important it was to raise awareness, but it wasn’t until my friend and I started an online petition to force Insurance Companies to cover Wound Care products (you…

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EB Awareness Tags by Wayne Lemos – Part 4

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A super-friend from India, who is a graphic designer and an amazing helping hand for many charities, took the time to do quite a few EB Awareness Tags for this website. I’ve posted quite a few on our Facebook page, and I am now posting them on this blog a few at a time as…

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EB Awareness Tags By Wayne Lemos – Part 3

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A super-friend from India, who is a graphic designer and an amazing helping hand for many charities, took the time to do quite a few EB Awareness Tags for this website. I’ve posted quite a few on our Facebook page, and I am now posting them on this blog a few at a time as…

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EB Awareness Tags by Wayne Lemos – Part 2

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A super-friend from India, who is a graphic designer and an amazing helping hand for many charities, took the time to do quite a few EB Awareness Tags for this website. I’ve posted quite a few on our Facebook page, and I am now posting them on this blog a few at a time as…

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EB Awareness Tags by Wayne Lemos – Part 1

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A super-friend from India, who is a graphic designer and an amazing helping hand for many charities, took the time to do quite a few EB Awareness Tags for this website. I’ve posted quite a few on our Facebook page, and I am now posting them on this blog a few at a time as…

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A couple of new EB Awareness Tags…

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  Just a couple of images I threw together today. Feel free to take and use in any way you like. I am working on a few more, I will post them when they are ready! Blessings…

EB Awareness Week

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I posted this on my blog last year to commemorate EB Awareness Week. These feelings haven’t changed, Nicky is just one year older, he will turn 16 on November 25th.  If you know an EB mom and if you do NOTHING else for this EB Awareness week, give her some kindness today. *********************************** The last…

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