Category Archives: EB Awareness

EB Parent Encouragement

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Having a child with EB is tough. You can survive if you can let attitudes & comments from others roll off you, knowing that your journey as an EB parent is important. You are your child’s voice, their nurse, their advocate but most of all their parent, their heart & soul. YOur journey will be…

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Wonder Woman EB Mom

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Of course I can change bandages, deal with insurance companies, lift wheelchairs into my trunk, handle dozens of medications, fix g-tube machines and keep up with my child’s appts with all his doctors… while baking cupcakes, helping with homework and make sure we don’t run out of mil, I just rather stay away from the…

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I am a Child with Epidermolysis Bullosa

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I am a child with Epidermolysis Bullosa My skin is extremely fragile. My body is wrapped in gauze to protect my skin and allow the wounds to heal. My condition is genetic and is not contagious. Most importantly, I need your unconditional love, your support & a CURE.