A couple of new EB Awareness Tags…
0 CommentJust a couple of images I threw together today. Feel free to take and use in any way you like. I am working on a few more, I will post them when they are ready! Blessings…
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A Journey Into Motherhood
0 CommentFrom the book “Living with Epidermolysis Bullosa” (ONLY $2.99 for the Kindle!) This story was written in early 2007. Nicky is now nearly 16 (his birthday is in late November). Follow Nicky’s Caringbridge Blog at http://www.caringbridge.org/visit/nickyz (you need to log in to view it, but it’s free). A Journey Into Motherhood By Silvia C. silviaskingdom.com California, USA…
EB Awareness Week
0 CommentI posted this on my blog last year to commemorate EB Awareness Week. These feelings haven’t changed, Nicky is just one year older, he will turn 16 on November 25th. If you know an EB mom and if you do NOTHING else for this EB Awareness week, give her some kindness today. *********************************** The last…
Resources
0 CommentThere are many resources to assist with various things needed by EB families or other families in need. Here’s a list of some we’ve found, please let us know if there are others we might have missed by entering the link or links in the Facebook plug-in below this post! Some of these links are…
EB Awareness Tags
0 CommentEB Awareness is upon us (the last week of October) and I wanted once again share some tags you can use to spread awareness. These tags were either made by yours truly or were made by others who wanted to help the cause. Please feel free to use these images as you wish. Simply click on the…
The Healing Power of Humor
0 CommentBy Silvia Corradin From: Special Mommy Chronicles (Unpublished Column from July 6, 2006) The calendar in my computer room just taught me something today… it said: “A cheerful heart is good medicine.” King Solomon (Proverbs 17:22). It’s so true, too. After my son died and for many years after Nicky was born, I was incapable…
Paying it Forward
0 CommentFor many years now, since 2005, Amy Delmege has crafted a special gift to all campers attending Camp Wonder. A pillow duck! I interviewed Amy this year at camp asking her how she got the idea and how she accomplishes this monumental task. She is paying it forward! Please Note: Campers usually need to bring…
New Low Price for Kindle versions!
0 CommentHello everyone, just a quick notice! The Kindle editions of BOTH Living with Epidermolysis Bullosa and Special Mommy Chronicles are now available for the NEW low price of $2.99! Click the covers below to be taken to their respective page at amazon.com If you don’t have a kindle, the APPS are FREE for…
Insurance & EB
0 CommentThere is a difference between HMOs and PPOs as per it concerns covering EB related supplies. For the most part, HMOs do not pay for any bandages or any wound care supplies. If they do it’s rare, although it’s been improving lately. Most HMO policies state that they do not cover “over the counter” items,…
The Parent’s Marriage
0 CommentBy Silvia Corradin From: Special Mommy Chronicles (Unpublished Column from August 14, 2006) Marriage in America is already a weak preposition, as the latest statistics show that 43% of all marriages end in divorce. Throw in the mix a child with a disability and a marriage that was hanging on by a thread will probably…