Epidermolysis Bullosa Info & Awareness
Originally posted by Silvia on her blog: http://blog.silviaskingdom.com/?p=852 When you know more than the real doctors do about your child. When you consider internet friends you’ve never met to be some of your best friends. When you think it’s a good day if you don’t see any blood. When you get asked at least once a week…
CLICK HERE for the Spanish version Epidermolysis Bullosa, EB, is a very difficult condition to live with, even with the mildest forms. These are things of outmost importance in helping your child coping with EB: Accept the EB and accept your child for who he is. This sounds simple, but it’s not. There is a…
Meet The Parents In the late ’90s and early 2000s this website had a recurring ‘featured’ parent. While we no longer do that, the featured parent and their stories are still available to view. God Bless them all. Happy Mother’s Day! Melissa & Greg Gray Molly Barber Tammy Bradley Mary Jo Burgy Sheri Coil Silvia…
