Epidermolysis Bullosa Info & Awareness
It is excruciatingly hard to feed a child with RDEB (Recessive Dystrophic EB). The mouth, throat and esophagus are prone to blisters, which, in turn, can and will produce scar tissue-enough to obstruct the passage of food through the esophagus. Because of this, RDEB children and adults can only eat mushy or liquid foods-or, at…
Collected by Melanie (Logan) England unless otherwise noted We all know how hard it is for EB patients to get enough calories and protein into their diet, especially when they have esophageal complications and require a soft diet. Here are a few recipes that have worked well in our home. Homemade Spaghetti-Os 2 cups cooked…
Diet for Epidermolysis Bullosa For children over 1 year This is the transcript of a little booklet distributed by DEBRA UK called “Diet for Epidermolysis Bullosa”. Thank you Brenda for typing this for us! 
Nutrition in Epidermolysis Bullosa Children with the more severe forms of EB have problems consuming an adequate food intake. This is…
