{"id":276,"date":"2011-02-19T04:13:54","date_gmt":"2011-02-18T19:13:54","guid":{"rendered":"http:\/\/blog.ebinfoworld.com\/?p=276"},"modified":"2017-10-11T10:18:49","modified_gmt":"2017-10-11T01:18:49","slug":"eb-patients-favorite-foods","status":"publish","type":"post","link":"https:\/\/blog.ebinfoworld.com\/?p=276","title":{"rendered":"EB Patients’ Favorite Foods"},"content":{"rendered":"
\"\"<\/a>

Mac & Cheese<\/p><\/div>\n

It is excruciatingly hard to feed a child with RDEB (Recessive Dystrophic EB).
\nThe mouth, throat and esophagus are prone to blisters, which, in turn, can and will produce scar tissue-enough to obstruct the passage of food through the esophagus. Because of this, RDEB children and adults can only eat mushy or liquid foods-or, at the very least, chew their food extremely well before they swallow it. Here is a list of some of the kids (and four adults!) on our list’s favorite foods-hopefully you can find something to bring variety to the table for your EB child…<\/p>\n

Weston’s favorite foods – RDEB patient<\/strong><\/p>\n

Marshmallows
\nPork and beans
\nBananas and cool whip
\nPlain cheesecake
\nJuice from gumbo or soup
\nPotted meat stirred with mayo
\nPeanut butter and honey sandwich
\nGrilled cheese sandwich
\nCottage cheese
\nYogurt
\nApplesauce
\nBaked sweet potatoes
\nPudding
\nWhite part of Oreo cookies
\nCake
\nBanana
\nMac and cheese
\nCheese burger (minus the meat, onions and pickles)-eats a minuscule amt. of it though, nothing with a crunch or difficult to chew.
\nRice is soft, but he cannot eat it.
\nVienna sausages (dips them in mustard, ketchup, mayo)
\nPotted meat stirred with mayo
\nPeanut butter and honey sandwich
\nPeanut butter and banana mashed up together (not a sandwich)
\nCheese burger (minus the meat, onions and pickles)-eats a minuscule amt. of it though, nothing with a crunch or difficult to chew.
\nRice is soft, but he cannot eat it.
\nVienna sausages (dips them in mustard, ketchup, mayo)
\nPeanut butter and banana mashed up together (not a sandwich)
\nIce-cream milkshakes (pediasure, banana, peanut butter, ice-cream, choc. syrup), or just a shake made thin at a restaurant
\nRefried beans-but usually chokes on the little pieces of hull in it
\nCheese plain, or dipped in peanut butter, or mayo, must. or ketchup
\nMashed potatoes\/baked potatoes (with cheese butter and sour cream)
\nSoft cookies of any kind without nuts or coconut or anything crunchy in it, those kind you can slice and bake, just slice them thick and cook them shorter and there ya go or the cookies at the mall! They are soft!!
\nSpaghettios, but sometimes chokes<\/p>\n

Dana’s Favorite Foods – RDEB patient<\/strong><\/p>\n

Eggs
\nPancakes
\nFrench toast
\nDad’s Belgium waffles
\nBlueberry muffins
\nLiverwurst
\nEgg and chicken salad
\nMary Kitchen corned beef
\nStove top stuffing
\nPlum sauce
\nSpare ribs
\nScallion pancakes
\nSoy sauce chicken
\nSteamed eggs
\nRamen noodles
\nIce cream
\nPudding
\nHershey bars (plain)
\nReese’s PB Cups
\nRolos
\nPlain m&m’s
\nWhole milk
\nWelch’s white grape
\nWg-peach and pear
\nMauni Lai juice
\nSnapple
\nArizona
\nLipton Brisk iced teas
\nSodas
\nCereal: Cheerios, Special K, Rice Crispies, Golden Grahams, Fruit Loops
\nBreyers Smooth & Creamy yogurt
\nFreihoffer’s Country white bread, seedless rye bread, sandwich rolls
\nHomepride wheat bread boiled ham, and the bread recipes from https:\/\/www.village-bakery.com<\/span><\/a>
\nHoney roasted or smoked turkey
\nChicken of the Sea tuna a la dad
\nAny creamed soup, Progresso chicken Noodle, Chickarina soups, Campbell’s
\nTomato soup, egg drop hash Lipton noodles and sauce packets
\nHoward Johnson’s frozen mac and cheese (the best! but hard to find)
\nGranny Shu’s Chinese meatballs
\nBoiled chicken w\/scallions
\nPasta – vermicelli, angel hair, elbows, linguini, smooth ziti, penne, lasagna, and pastina. Regular spaghetti gives me huge mouth blisters EVERY time.
\nMeats- chicken in any form, meatloaf, hot dogs, flounder, sole, scallops, crab meat and crab cakes
\nVeggies – asparagus, broccoli, string beans, zucchini, carrots, cabbage, potatoes (mashed, mom’s diced, baked, french fries), onions, red and green peppers – all cooked really soft
\nFruits-Canteloupe, bananas, cherries, peaches, pears, strawberries, blueberries, oranges, tangerines
\nCheeses & dairy – American, Monterey jack, cheddar, Baby Bell, ricotta, fresh mozzarella, and Boursin soft garlic cheese (yum), sour cream (plain and mixed with sugar and vanilla extract), butter, mayonnaise, onion dip, tartar sauce
\nCrackers & Cookies – Ritz, Club, and Toasted Buttercrisp crackers, Pringles, Pepperidge Farm Milano and Mint Milano cookies, Hydrox, Vienna Fingers,sugar wafers
\nKozy Shack rice pudding<\/p>\n

Samantha’s Favorite Foods – RDEB patient<\/strong><\/p>\n

Flavor mashed potatoes
\nTuna fish—fixed my way
\nBoiled chicken till it is mushy
\nGrilled cheese
\nEggs
\nMacaroni&Cheese but only by Kraft “the Cheesiest”
\nCream cheese and jelly sandwiches
\nSoups, chicken&stars by Campbell, and noodles, and rug rats all by Campbell
\nSausage ham cheese cut into pieces
\nGreek olives, black olives, and green olives
\nChinese boiled dumplings french toast<\/p>\n

Andrew’s favorite foods – RDEB patient<\/strong><\/p>\n

Pudding
\nIce cream
\nChocolate popsicles
\nYogurt
\nPretzels
\nSugar cookies
\nFrench fries
\nWhipped cream
\nSpinach and green beans and rice mashed up
\nHe will generally try stuff (after we make a big deal about it) but if he gets even slightly choked that’s it, it will never pass his lips again. So we always start with something he likes to make sure his throat is not sore. Then we slip in the new thing. I have let Cheerios sit and get soggy and he will eat some of them. I guess that would work with any cereal. Eating is slow because he lets each mouthful get soggy before he will swallow.<\/p>\n

Nicky’s favorite foods – child w\/RDEB<\/strong><\/p>\n

Nutella
\nPeanut Butter
\nWhip Cream
\nSour Cream
\nButter-plain (I know…bleah)
\nSugar
\nTeddy Graham
\nVanilla wafers
\nIce Cream
\nSpray Cheese
\nYogurt
\nPudding
\nPancakes<\/p>\n

Cassie’s favorite foods – RDEB<\/strong><\/p>\n

Pudding
\nIce cream
\nMashed potatoes
\nSoup
\nEgg salad
\nCheese puffs
\nM&m minis
\nYogurt
\nAlfredo sauce
\nCream cheese
\nRicotta cheese
\nPopsicles.<\/p>\n

Cindy’s favorite foods – RDEB<\/strong><\/p>\n

Mac and Cheese
\nAlphabet Soup, Rugrats soup, Chicken and Stars all by Campbell’s
\nPasta with tomato sauce (I have to take scissors and cut the pasta REAL SMALL and she will not eat the sauce is there are chunks of meat in it)
\nSoft french fries
\nMcDonald’s Chicken Nuggets
\nPopcorn (if her throat and mouth aren’t too sore)
\nReal fruit popsicles (doesn’t care too much for ice cream but will eat it
\nsometimes)
\nChocolate milk (I use fat free milk with chocolate Ovaltine for calories and
\nvitamins)<\/p>\n

Jennifer’s favorite foods – Adult w\/RDEB<\/strong><\/p>\n

Cheese
\nMashed potatoes
\nGravy Beef stew
\nMac & chess
\nSpaghetti
\nChocolate pudding
\nChocolate Cookies
\nChicken breast
\nMeat loaf
\nPacked potato
\nEggs
\nPizza
\nTeddy grahams
\nPeanut butter
\nJelly Soups
\nPopsicle fudge bars YUMMY
\nI drink a boost three time a day.<\/p>\n

Anne~Maire’s favorite foods – Age 3 w\/DDEB<\/strong><\/p>\n

Noodles, any size shape and color
\nCheese sauces
\nGravy (white and brown)
\nAlfredo Sauce Rice, oatmeal, cream of wheat, and grits
\nCheerios Yogurt, cream cheese, cottage cheese grapes (quartered), watermelon, strawberries, blackberries, boysenberries, cherries, BANANA, peaches (canned), and pears (canned) peanut butter (creamy)
\nAll the flavors of Jams and Jellies hotdogs, vienna sausages, baloney, tuna (with mayo and sometimes even onion and celery and pickles), ribs on the bone, chicken thigh meat (cut up), pork chops on the bone (cut down to her size) squash, corn on the cob, broccoli, GREEN BEANS (and a dipping sauce is demanded), sometimes tomatoes
\nPUDDINGS (rice pudding is good for bedtime)<\/p>\n

Bruce’s favorite foods – Adult w\/RDEB-HS<\/strong><\/p>\n

Meat Loaf Pizza
\nLemon pepper chicken
\nSteak or chicken (made by recipe)
\nHam Pudding (banana or Choc.)
\nRice kripies treats
\nStuffing Turkey
\nBake beans
\nDrinking Jell-O or eating it
\nHot Choc.
\nFrench Toast
\nMac & cheese w\/ tuna (Velveeta)
\nDrink boost
\nClub Crackers w\/ grape jelly
\nLove cookies (peanut butter, choc. chip, oatmeal)
\nPeanut butter
\nSpaghetti
\nIce Cream (homemade)
\nScrambled eggs
\nBacon
\nToast
\nCorn
\nGreen Beans
\nBroccoli & cheese
\nBoston Market Meals & Stouffers (Frozen)
\nRoast Beef (tender in crock-pot w\/ gravy)
\nMashed Potatoes (Real Thing)
\nMilk Shakes (Strawberry)
\nShrimp & Fish (Fresh from Morehead City, NC)
\nHungry Man’s Turkey & Dressing
\nMuffins (blueberry or banana)<\/p>\n

Bruce’s Tender Steak Recipe – Adult w\/RDEB<\/strong><\/p>\n

For all of us with difficulty eating meats (Rib eye, T-Bone, Cube Steak) or chicken, that comes with having EB. Myself, I like steak, and other meats, but I don’t enjoy them when I have trouble eating, and chewing forever to swallow. Char Boiling, and frying don’t to the trick.<\/p>\n

So, my mom beats the meat good, flour, and season it. Then she fry’s it briefly on both side until brown. The she takes a dish, puts hot water, then she puts about three beef bouillon cubes to devolve. Then put the steak in the dish, with a lid. Set the temperature oven for 350 degrees, bake the steak for at least 90 minutes, and it should be nice and tender, it may break apart. I will not eat steak any other way at home. I will not attempt to eat steak when I dine out. This way, it’s a much enjoyable way of eating steak that I ever had before. The longer you bake it, the easier the steak is more tender it will be. Cube steak, I like it in mushroom soup or beef bouillon cubes, and bake at 375 degrees for at least two hours, because cube steak is rubbery to me, (but it’s not my favorite). I would like feed back from anybody who does try this, and hear your opinions how the adults, and moms who have EB children. I had my share of problems with swallowing, and throat problems in my 32 1\/2 years. I hope this will help everybody, because I think we all need protein in our regular diet, since we lose a lot through our skin, you could even start with protein smoothies to kick-start your metabolism<\/span><\/a> little by little.<\/p>\n","protected":false},"excerpt":{"rendered":"

It is excruciatingly hard to feed a child with RDEB (Recessive Dystrophic EB). The mouth, throat and esophagus are prone to blisters, which, in turn, can and will produce scar tissue-enough to obstruct the passage of food through the esophagus. Because of this, RDEB children and adults can only eat mushy or liquid foods-or, at…<\/p>\n

Read More<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43],"tags":[18,44,45],"class_list":["post-276","post","type-post","status-publish","format-standard","hentry","category-food-recipes","tag-diet","tag-food","tag-recipes"],"_links":{"self":[{"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/posts\/276","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=276"}],"version-history":[{"count":6,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/posts\/276\/revisions"}],"predecessor-version":[{"id":1845,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/posts\/276\/revisions\/1845"}],"wp:attachment":[{"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=276"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=276"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=276"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}