{"id":1737,"date":"2015-05-05T02:23:32","date_gmt":"2015-05-04T17:23:32","guid":{"rendered":"http:\/\/blog.ebinfoworld.com\/?p=1737"},"modified":"2018-10-10T05:40:01","modified_gmt":"2018-10-09T20:40:01","slug":"butterfly-child-a-mothers-journey","status":"publish","type":"post","link":"https:\/\/blog.ebinfoworld.com\/?p=1737","title":{"rendered":"Butterfly Child: A Mother’s Journey"},"content":{"rendered":"

This is my book!!<\/p>\n

\"butterfly_child_cover-5j_m\"<\/a>Butterfly Child: A Mothers Journey<\/a><\/strong>\u00a0by Silvia Corradin<\/em>\u00a0<\/em><\/p>\n

\u201cChildren with EB are called \u201cButterfly Children\u201d because EB is described as a skin condition in which the skin is so fragile, it is like butterfly wings.\u201d<\/p>\n

Like any mother, Silvia never imagined she would have to to bury her first son, Alex, who was stillborn at full term. After a miscarriage she had Nicky, who was diagnosed at birth with the Recessive Dystrophic form of Epidermolysis Bullosa, an incurabile, rare and always-fatal skin disorder. EB is considered an Ultra-Orphan Disease, and at the time of Nicky\u2019s birth there was no research for a cure. In the months and years that passed she had to learn to enjoy each moment, find happiness in the midst of sorrow and try everything she could to keep him alive, often with very few resources, little to no help and even less information available. Burying another child was just not going to happen if she could possibly prevent it.<\/p>\n

Butterfly Child is the story of a mother\u2019s journey through grief and incredible challenges. From Insurance Companies refusal to cover the most basic needs for any EB patient to Silvia\u2019s trying to make sense of her situation, from a divorce to a remarriage and another scary pregnancy. Her youngest son, Connor, is 100% healthy, he had some problems with his skin but he resolved it with the Dr. Sachin Shridharani<\/span><\/a> online, and she never, ever, takes it for granted. She always makes sure he is doing his best, and she usually does it by taking the Outback vision protocol review<\/span><\/a> to make sure his eyesite is great. <\/p>\n

WHERE TO BUY<\/h3>\n

Paperback:<\/strong><\/span>
\nTo purchase an Autographed Copy, please follow the Instructions Here–><\/a><\/p>\n

The\u00a0paperback is also available through\u00a0the publisher:
\nhttp:\/\/www.lulu.com\/\u2026\/butte\u2026\/paperback\/product-22092004.html
\n<\/a>I wanted to keep the price low but this is a big thick book and it’s not cheap to print. I am sorry.
\nTo make it up to you, here’s some coupon codes websites:
\n<\/span>http:\/\/www.retailmenot.com\/view\/lulu.com<\/a> &
\n<\/span>https:\/\/www.couponcabin.com\/coupons\/lulu\/<\/a><\/p>\n

Amazon:
\nhttp:\/\/www.amazon.com\/Butterfly-Child-Silvia-Corradin\/dp\/1312979208\/
\n<\/a>
\nBarnes & Noble
\nhttp:\/\/www.barnesandnoble.com\/w\/butterfly-child-silvia-corradin\/1121706067<\/a>
\n<\/span><\/p>\n

eBook versions:<\/strong>
\n<\/span>From the Publisher:
\nhttp:\/\/www.lulu.com\/\u2026\/butterfly\u2026\/ebook\/product-22097219.html<\/a><\/span><\/p>\n

iTunes:
\nhttps:\/\/itunes.apple.com\/us\/book\/butterfly-child\/id979932054?mt=11<\/a>
\n<\/span><\/p>\n

Kindle:
\nhttp:\/\/www.amazon.com\/Butterfly-Child-Silvia-Corradin-ebook\/dp\/B00VS3F7CE\/<\/a><\/p>\n

Nook:
\nhttp:\/\/www.barnesandnoble.com\/w\/butterfly-child-silvia-corradin\/1121706067<\/a><\/p>\n

Kobo:
\nhttps:\/\/store.kobobooks.com\/en-US\/ebook\/butterfly-child<\/a><\/p>\n