{"id":1413,"date":"2013-09-25T06:31:08","date_gmt":"2013-09-24T21:31:08","guid":{"rendered":"http:\/\/blog.ebinfoworld.com\/?p=1413"},"modified":"2017-10-26T07:10:56","modified_gmt":"2017-10-25T22:10:56","slug":"courage-under-wraps","status":"publish","type":"post","link":"https:\/\/blog.ebinfoworld.com\/?p=1413","title":{"rendered":"Courage Under Wraps"},"content":{"rendered":"

\"M\"<\/a>For the past year my new friend and fabulous photographer Jodi Champagne, has been documenting my son’s life as it is.<\/p>\n

My son’s name is Nicholas Zahorcak, we call him ‘Nicky’. He was diagnosed shortly after birth with the Recessive Dystrophic form of Epidermolysis Bullosa.
\nJodi photographed us doing\u00a0bandage changes, during trips to the various Doctors, from the Dentist of Asecra dentists<\/a> to Hydrotherapy, came with us Trick or Treating and to visit Santa & the Easter Bunny. She witnessed pain, suffering and sibling rivalry.<\/p>\n

\u201cCourage Under Wraps<\/a>\u201d is now a reality, the reality of life with RDEB, from the moment Nicky wakes up in the morning to the moment he goes to bed at night,\u00a0aimed at raising EB Awareness. At this point it\u2019s available in print, as a PDF download and as an ebook for the iPad. Jodi is working on getting it available in other ebook formats, such as the Kindle & the Nook. Part of the proceedings are donated to the EBMRF <\/a>for a cure.<\/p>\n

Here’s just 3 of the hundreds of photos that are in the book…<\/p>\n

\"Nicky<\/a><\/p>\n

\"Nicky<\/a>

Nicky (and mom) during a bandage change, doing some physical therapy on his hand.
From the book ‘Courage Under Wraps<\/a>‘<\/p><\/div>\n

\"Nicky<\/a>

Nicky during Hydrotherapy. From the book ‘Courage Under Wraps<\/a>‘<\/p><\/div>\n

There is a\u00a0Facebook page<\/a>\u00a0for this book as well which has gotten a great amount of interest, many photos that did not make the book (and some that did!) have been posted,\u00a0LIKE it today<\/a>!<\/p>\n

Thank you so much for caring and please help us spread the word about this brutal condition and help us getting closer to a cure.<\/p>\n

Blessings,<\/p>\n

Silvia<\/p>\n

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Silvia Corradin<\/a><\/div>\n

Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more.<\/p>\n

\"Facebook\"<\/a> \"Twitter\"<\/a> \"Google+\"<\/a> \"Flickr\"<\/a> \"YouTube\"<\/a> <\/p>\n<\/p><\/div>\n

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<\/p>\n","protected":false},"excerpt":{"rendered":"

For the past year my new friend and fabulous photographer Jodi Champagne, has been documenting my son’s life as it is. My son’s name is Nicholas Zahorcak, we call him ‘Nicky’. He was diagnosed shortly after birth with the Recessive Dystrophic form of Epidermolysis Bullosa. Jodi photographed us doing\u00a0bandage changes, during trips to the various…<\/p>\n

Read More<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[13,53],"tags":[14,145,54,62],"class_list":["post-1413","post","type-post","status-publish","format-standard","hentry","category-books","category-eb-awareness","tag-book","tag-courage-under-wraps","tag-eb-awareness-2","tag-ebmrf"],"_links":{"self":[{"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/posts\/1413","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1413"}],"version-history":[{"count":5,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/posts\/1413\/revisions"}],"predecessor-version":[{"id":1855,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=\/wp\/v2\/posts\/1413\/revisions\/1855"}],"wp:attachment":[{"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1413"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1413"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blog.ebinfoworld.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1413"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}