{"id":1176,"date":"2012-09-12T06:15:05","date_gmt":"2012-09-11T21:15:05","guid":{"rendered":"http:\/\/blog.ebinfoworld.com\/?p=1176"},"modified":"2012-09-12T06:15:05","modified_gmt":"2012-09-11T21:15:05","slug":"uncovering-the-pain","status":"publish","type":"post","link":"https:\/\/blog.ebinfoworld.com\/?p=1176","title":{"rendered":"Uncovering the pain\u2026"},"content":{"rendered":"

By\u00a0Christie Zink<\/em>
\nFrom her Blog: This Little Light<\/strong><\/a><\/p>\n

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It has taken me some time for me to write this post. \u00a0I have sat down to write it multiple times, only to get back up because I found myself so full of emotion that I could not even find it within me to type. \u00a0There are so many things I want to share and express and sometimes articulating it can be difficult for me. \u00a0This is not an easy post for it may be considered controversial, but in my heart, I know that this needs to be shared. \u00a0People need to know and they need to understand\u2026<\/p>\n

Every time a parent asks me to photograph their child, I am no doubt honored. \u00a0They are entrusting me to capture the\u00a0essence\u00a0that is their child. \u00a0It is always a privilege to be considered and I find tremendous joy in doing this. \u00a0And when I found myself becoming involved in advocacy, I never imagined how privileged I would be. \u00a0It so humbling to be trusted with these amazing kids. \u00a0However, nothing can ever compare to the feeling I got when I was recently asked to be a part of a bath and bandage change. \u00a0These are by far some of the most intimate moments and I have been asked to be there and capture it through my lens.<\/p>\n

If you have not ever met sweet little Anton, let me just tell you that he has a smile that will melt your heart. \u00a0You instantly fall in love with him and feel a special peace\"\"<\/a>\u00a0in his presence.\u00a0 He is truly an incredibly special little boy who do doubt has a very special purpose.\u00a0I will never forget him telling me that he loved me\u2026it took my breath away. \u00a0It took everything that I had not to allow the tears to come.<\/p>\n

This precious boy spent the first part of his life in an\u00a0orphanage\u2026abandoned.\u00a0However, he found his forever family in Vanessa and Jason Delgado\u2026two incredibly selfless people. \u00a0They have given their heart to Anton and they have given him a chance at life. \u00a0A chance that he would have never seen had he remained in an\u00a0orphanage. \u00a0You see there he would never receive the dedicated care that his mommy and daddy provide\u2026the love and attention\u2026the pain staking process of caring for an EB child properly.<\/p>\n

Thanks to Vanessa\u2019s willingness to share Anton\u2019s story and determination to raise awareness and find a cure, I have the\u00a0privilege\u00a0to share with you this process through my photographs. \u00a0I will admit that it is not an easy thing, but it is unfortunately reality. EB is brutal and there is absolutely no way around it. \u00a0So often we see these precious children and adults wrapped in bandages, not really being able to grasp their pain. \u00a0This is what lies beneath\u2026this is EB\u2026<\/p>\n