{"id":1068,"date":"2012-08-14T07:50:39","date_gmt":"2012-08-13T22:50:39","guid":{"rendered":"http:\/\/blog.ebinfoworld.com\/?p=1068"},"modified":"2018-10-20T06:50:11","modified_gmt":"2018-10-19T21:50:11","slug":"my-take-away-from-the-debras-pcc-in-orlando-part-5","status":"publish","type":"post","link":"https:\/\/blog.ebinfoworld.com\/?p=1068","title":{"rendered":"My take-away from the Debra\u2019s PCC in Orlando \u2013 Part 5"},"content":{"rendered":"

Here is more information about several talks from the conference from July 31, 2012:<\/p>\n

Anesthesia for your child with Epidermolysis Bullosa & Interdisciplinary EB care<\/strong><\/p>\n

These two talks, which I will bunch up together simply because I don’t remember a whole lot from them\u00a0separately, were done by Dr. Eric Wittkugel & Dr. Anne Lucky, both from Cincinnati’s Children Hospital. The only two notes I wrote down were to, one, look up ‘Mepitac<\/a>‘, which is a tape that can be used for EB patients (does it work for RDEB? They say it does, I am always a little weary of it, but I am willing to try it) and, two, the duration of anesthesia is not a problem, there is no risk in case a patient needs to be ‘under’ longer for multiple procedures.<\/p>\n

Other than that, I will let the slides do the talking, hopefully they will help someone. Remember to click on the slides to view a bigger version…<\/span><\/p>\n

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All of these slides are from the Anesthesia presentation, I found THIS PDF<\/a> document online from Stanford with more info about Anesthesia that relates to EB.<\/p>\n

Here is the videos of these presentations courtesy of Debra:<\/p>\n