Tag Archives: New Parents

Medical Care for EB patients

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Bathing Bathing can be a good way to cleanse wounds because you can add different things to the bath water. Some patients bathe while others shower or do a combination of both. These are some of the things people use in their baths to help with infections: Aveeno Oatmeal bath – Aveeno Daily Moisturizing Bath with natural…

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Helpful Words for New Parents

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I cannot stress enough how important it is for family to support the new parents at this time. This is a frightening time for the new parents and they often wonder how their family will treat the new baby. Showing how much you love them and their new baby will help to alleviate these fears;…

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Guidelines for parents

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Guidelines for parents on the play and development of the child with Epidermolysis Bullosa  This is the transcript of a little booklet distributed by DEBRA UK by Joyce Stebbings Thank you Brenda for typing this for us!  INTRODUCTION As parents with a child who has just been diagnosed, as having Epidermolysis Bullosa it is difficult at…

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Nutrition for Babies with Dystrophic EB

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BY: Lesley Haynes SRD The latest version of this booklet is available in PDF format at the Debra International website. You can download it HERE. Webmaster note: Although this was written specifically for Dystrophic EB by Registered Dietitian Lesley, it has been pointed out to me that it is helpful for babies and toddlers of…

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Basic 101 Care

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This page was put together with the aid of a little booklet distributed by DEBRA UK called “Care and Management of Children with Dystrophic Epidermolysis Bullosa”. Because of the rarity of EB, many parents have not been helped by the medical community, and hospitals have even injured these children by applying tape, bracelets, sucking the…

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For New Parents

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For New Parents I put together this page with the aid of a leaflet distributed by DEBRA UK called “Dystrophic Epidermolysis Bullosa Initial Information for Parents”. The leaflet this information is taken from is specific about caring for newborns of the “Dystrophic” form of Epidermolysis Bullosa, however, most of the information is valid for the…

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