Tag Archives: Epidermolysis Bullosa

I am a Child with Epidermolysis Bullosa

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I am a child with Epidermolysis Bullosa My skin is extremely fragile. My body is wrapped in gauze to protect my skin and allow the wounds to heal. My condition is genetic and is not contagious. Most importantly, I need your unconditional love, your support & a CURE.

Please Watch!

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Jodi Champagne, who is the photographer who documented my son Nicky’s life with Epidermolysis Bullosa, was recently interviewed by an online video magazine and this is the interview– read this. Get the Book exclusively at BLURB http://www.blurb.com/b/5024440-courage-under-wraps and on iTunes! https://itunes.apple.com/us/book/courage-under-wraps/id803462653?mt=11