Tag Archives: dos and don’ts

Hints From Grandma Shirley

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Shirley, grandma and caregiver of Jennifer, an RDEB patient, shares her hints and tips and her knowledge about EB care with us. Constipation Hi all, I found this article in a pamphlet put out by dEBra International in their Nutrition section. Thought it might be helpful: Constipation in babies and young children is often the…

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Helpful Words for New Parents

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Taken and adapted for EB from the Down Syndrome for relatives page website I cannot stress enough how important it is for family to support the new parents at this time. This is a frightening time for the new parents and they often wonder how their family will treat the new baby. Showing how much…

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