Tag Archives: cure

I am a Child with Epidermolysis Bullosa

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I am a child with Epidermolysis Bullosa My skin is extremely fragile. My body is wrapped in gauze to protect my skin and allow the wounds to heal. My condition is genetic and is not contagious. Most importantly, I need your unconditional love, your support & a CURE.

EB wounds offensive to Facebook?

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Apparently the daily life of my son is offensive to Facebook and whoever ‘reported’ this photo to Facebook as a┬áviolation of the statement of rights and responsabilities.┬áHuh? No, this photo isn’t pretty. That’s the point of posting it, isn’t it? To SHOW what EB is really like. To show the suffering EB patients endure. We’ve…

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