Tag Archives: Babies

Helpful Words for New Parents

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Taken and adapted for EB from the Down Syndrome for relatives page website I cannot stress enough how important it is for family to support the new parents at this time. This is a frightening time for the new parents and they often wonder how their family will treat the new baby. Showing how much…

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Bandaging and Severe RDEB ~My Story~

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by Silvia Corradin My story on how I came to care for my son started, as with all RDEB babies, when he was born. Since he was c-section he came out perfect except for some problem with his mouth. The nurses sucked all his skin out of his mouth when they did the routine suctioning…

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Nutrition for Babies with Dystrophic EB

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BY: Lesley Haynes SRD The latest version of this booklet is available in PDF format at the Debra International website. You can download it HERE. Webmaster note: Although this was written specifically for Dystrophic EB by Registered Dietitian Lesley, it has been pointed out to me that it is helpful for babies and toddlers of…

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