Tag Archives: Article

EB and the Eyes

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This is the transcript of a helpful book from DebRA U.S. in regards to EB and how it effects the eyes. Thank you Brenda for taking the time to type this up for us!!! —- Problems with the eyes can occur in most forms of Epidermolysis Bullosa (EB).  The eyelids, conjunctiva and the cornea may…

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Physical Therapy

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I put this page together with the aid of a little booklet distributed by DEBRA UK called “A guideline to physiotherapy for parents of Children with Dystrophic Epidermolysis Bullosa”. As the booklet states, this page is most useful for parents who have a child with Recessive Dystrophic Epidermolysis Bullosa. The importance of movement Most people…

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Basic 101 Care

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This page was put together with the aid of a little booklet distributed by DEBRA UK called “Care and Management of Children with Dystrophic Epidermolysis Bullosa”. Because of the rarity of EB, many parents have not been helped by the medical community, and hospitals have even injured these children by applying tape, bracelets, sucking the…

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For New Parents

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For New Parents I put together this page with the aid of a leaflet distributed by DEBRA UK called “Dystrophic Epidermolysis Bullosa Initial Information for Parents”. The leaflet this information is taken from is specific about caring for newborns of the “Dystrophic” form of Epidermolysis Bullosa, however, most of the information is valid for the…

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