“As always, if you do not want your photos posted, all you have to do is ask and they will be deleted. If you would like your photos added (or updated!), just send me an email at ebmomma at gmail.com (sorry, I am trying to avoid spammers!) and attach the photo you would like me to add with the following info:
Full name of the patient, birth date, form of EB, where the family lives, and names of siblings (if any) and parents, along with any comment you would like to add. “
From Children (and adults!) with Recessive Dystrophic EB, posted by on 9/05/2010 (48 items)
- Sarah Isabel Oliveira was born on September 27, 1998. She has the Recessive Dystrophi…
- Catherine and Samantha Smith are identical twins, born November 8, 1997. They have th…
- Nicholas Alexander Zahorcak was born November 25, 1996. He has the Recessive Dystroph…
- Fallyn Raicheal Mcnamara was born on June 16th, 2002, she has the Recessive Dystrophi…
- Abdul Muqit was born on July 31st, 2004. He has the Recessive Dystrophic form of EB. …
- Aa’Leigha Ashlon Parker was born with RDEB on 10/28/00 in Laurinburg, NC where she cu…
- Dennis Parlevliet was born in June 1993. He has the Recessive Dystrophic form of EB c…
- Garrett Spaulding was born in January 1997. He has the Recessive Dystrophic form of E…
- Weston Zucha was born in August 1994. He has the Recessive Dystrophic form of EB and …
- Evey was born 9/9/2007. She has the Hallepeou Siemens subtype. Her only sibling is …
- Miranda Blattel was born December 14, 1998. She has the Recessive Dystrophic form of …
- Lucy Margaret Elizabeth Lott was born November 18 , 1998. She has the Recessive Dystr…
- Joey Entz was born on August 25, 1996. He has the Recessive Dystrophic EB, possibly t…
- Andrew Jordan Willett was born March 27, 1998. He has the Recessive Dystrophic form o…
- Antonio William Torres was born November 26, 2000. He has the Recessive Dystrophic fo…
- Jonathan was born May 11, 1999. He has the Recessive Dystrophic form of EB, and lives…
- Ian Evan Swarr was born May 28, 1998. He has the Recessive Dystrophic form of EB, and…
- Sammy Diaz just turned 5 yrs. He has RDEB. He is a tough, spunky little guy who loves…
- Ettore Buonocunto was born June 2, 1992. He has the Recessive Dystrophic form of EB, …
- Raymond Monroe was born 11-20-06 in San Antonio, TX. He has RDEB-HS and lives with bo…
- My son Zachery Ryan Myers has RDEB. His birthday is 8/29/06. He lives in PA. Zach has…
- Rachel Nicole Barber was born on September 22, 1998. Her little brother Matthew was b…
- Hunter Dandurand was born June 29, 1997. He has the Recessive Dystrophic form of EB a…
- Randall (Randy) Lowell Mayhew was born on May 22,1997 with Recessive Dystrophic EB, t…
- Samuel Arcides Diaz was born on September 16th, 2005 and has the Recessive Dystrophic…
- Chastity Nicole McNiel was born February 21, 1984 to Carol & Rex McNiel. She has the …
- Lance Ballantine was born April 19, 1999. He has either a mild localized or generaliz…
- Elizabeth “Lizie” Kaylee Fernandez was born November 19, 1994. She has the Recessive …
- Harlee Suzanne Bass was born October 28, 1997. She has the Recessive Dystrophic form …
- Jessica Peres Pimentel was born on November 26, 1991. She has the Recessive Dystrophi…
- Katherine Elizabeth Bartos was born June 13, 2000. Diagnosed with dystrophic form of …
- Oxlee Jr. was born on August 25, 2001 in North Carolina. He was born missing skin on …
- Charlotte Elizabeth Brown was born on August 7, 2005. She was diagnosed with RDEB. Th…
- Miranda Blattel was born December 14, 1998. She has the Recessive Dystrophic form of …
- Ashley was born on November 14, 1986. He has the Recessive Dystrophic form of EB, the…
- David was born on August 8, 1986. He has the Recessive Dystrophic form of EB and he l…
- Dona Reynolds was born January 13, 1988. She has the Recessive Dystrophic form of EB …
- Dalton Sky Legino was born Octover 5, 1993. Dalton has the Recessive Dystrophic form…
- Avery Raymond Perez was born on November 2, 2001. He has been diagnosed with dystroph…
- Zachary Alan Johnson (Zach for short) was born on Feburary 5, 2002. He has been diagn…
- Bianca Maria Contreras was born on September 17, 2002. She was diagnosed with RDEB – …
- Taylor Kirin was born June 25, 1997. She has the Recessive Dystrophic form of EB and …
- Joshua Jaramillo was born on June 15, 1996. He has the Recessive Dystrophic form of E…
- Nicole Marie Ibarra was born February 4, 2000. She has the Recessive Dystrophic form …
- João Gabriel (Bido) was born September 19, 1996. He has the Recessive Dystrophic for…
- Yasmin Elsamra was born on September 1, 1997 with RDEB. She lives in Egypt with her m…
- Natalee Haven RDEB lives in Vancouver ,WA. She was born on 8-1-10 and she has two sib…
- Teodor Janosevic, was born on March 23, 2008. He has RDEB, HS. He lives in Belgrade, …
Generated by Facebook Photo Fetcher
