“As always, if you do not want your photos posted, all you have to do is ask and they will be deleted. If you would like your photos added, just send me an email at ebmomma at gmail.com (sorry, I am trying to avoid spammers!) and attach the photo you would like me to add with the following info:
Full name of the patient, birth date, form of EB, where the family lives, and names of siblings (if any) and parents, along with any comment you would like to add. “
From Children (and adults!) with Dominant Dystrophic EB, posted by on 9/02/2010 (9 items)
- Sebastain Micheal Hinkle was born on April 25, 1992 with mild dominant dystrophic EB….
- Jesse Vensel was born in March 1995. He has the Dominant Dystrophic form EB and lives…
- Taylor Emmalee Marcoullier was born December 11, 1996. Taylor is 6 years old now. She…
- Anne-Marie Tanksley Howell (on the left) was born on May 26th, 1999. Heather Raine Ta…
- Jonas Matson was born in February 1998. He has the Dominant Dystrophic form of EB and…
- This is Katie, she was born on February 28, 2004. Katie has the dominant dystrophic f…
- Anthony Joseph Milano was born February 7, 2003 with Dominant Dystrophic EB. Veronic…
- Misty Anne Tanksley was born July 5, 1977. She has the Dominant Dystrophic form of EB…
- Cynthia Michelle Daniels was born 10/23/96 with Dominant Dystrophic Inversa Eb and li…
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