The most common forms of EB are autosomal dominant forms of generalized EB simplex and a localized form of EBS, Weber-Cockayne. In generalized EBS, bulla may be widespread but predominate on the extremities. Lesions heal without scarring and although fingernails may shed, they regrow normally. Mucous membranes are generally spared. Blistering tends to lessen by adolescence, and patients have a normal lifespan. Localized EBS, Weber-Cockayne type, often presents in later childhood and adolescence with lesions localized to hands and feet. EBS Dowling-Meara variant, may have severe blistering with significant morbidity and mortality in the first few weeks of life.
“As always, if you do not want your photos posted, all you have to do is ask and they will be deleted. If you would like your photos added or updated, just send me an email at ebmomma at gmail.com (sorry, I am trying to avoid spammers!) and attach the photo you would like me to add with the following info: Full name of the patient, birth date, form of EB, where the family lives, and names of siblings (if any) and parents, along with any comment you would like to add. “
From Children (and adults!) with EB Simplex, posted by on 9/01/2010 (26 items)
- Kaysie Norton was born in February 1996. She has the Dowling Meara-Simplex form of EB…
- Scooter was born on May 2nd, 1997. He has EB-Simplex, and lives with his mother Vanna…
- Gabriella Griffith (Gigi), was born April 4th 1995. She has the Dowling Meara-Simplex…
- Tori Cameron was born November 12th 1998. She has the Dowling Meara-Simplex form of E…
- Anton Cujec was born in the spring of 1997. He has the Simplex form of EB and lives i…
- Luke Sinanian was born March 21st 1996. He has the Dowling Meara-Simplex form of EB, …
- Kendall Lee Teague was born May 16th 1996. He has the Simplex form of EB. Kendall enj…
- Samantha Renee Denslaw was born on August 29, 2002. She has EB Simplex Dowling Meara….
- Amanda Williamson was born April 9, 1991. She has the Dowling Meara-Simplex form of E…
- Kallista Ann Thompson was born August 27th, 1999. She has the Simplex form of EB. The…
- Matthew Nini was born August 27, 1999. He has the Simplex form of EB and lives in But…
- Lamees Nassir Al-Suwaidi was born on July 25, 1996. She was born with EB Simplex. She…
- Hannah Enlow was born April 11, 2000. She has the Dowling Meara form of Simplex EB. S…
- Hello, my name is Dillion Prater, my birthday is June 5, 1997. I was born with EB Sim…
- Donovan Lang was born in May 2004. He has the Simplex-DM form of EB. Donovan has a si…
- Hello to all – my name is Wynter Rhys but I go by Wynter.B. I am nearly 12 (Decemb…
- Hello friends – my name is Keenyn Rhys and I turn 4 years old September 29th 2010….
- William Robert Grizzle was born March 16th, 2002, and was diagnosed with Simplex Dowl…
- Hi, my name is Devin Forde I was born May 15, 1995. I’m 15 yrs old & I live in Queens…
- Anna Dittman was born in April of 2001 to Wendy and Todd Dittman. Anna enjoys art an…
- Benjamin Pyles was born November 19th 1988. He has the Simplex form of EB. He’s been …
- Alicia Janine Yates was born is July 16 1999. She has EB Simplex, subtype unknown (mo…
- Madison and Michael Grider were born on January 25th, 1996 (Madison) and December 1st…
- Our hero, Christina Minkey was born September 29, 1999 and has EB Simplex subtype yet…
- Brittany Penta was born May 10, 1973. She has the Simplex form of EB. She lives in Ne…
- My name is Karen Reinders, I was born in July 1965 in Chillicothe Ohio. My daughter E…
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