Skip to main content

Supporting EB Awareness and Research

EB Info World

Teaching The World About Epidermolysis Bullosa

Home
Welcome to EB Info World
About EB & FAQ
EB Families Corner
EB Patient’s Photos & Memorials
EB Awareness

Links

Debra of America

EB Research Partnership

Debra International

EBMRF

Scott Ward-Schofield Mem. Fund

(Visited 31 times, 9 visits today)

Search for:

Menu

Home
Welcome to EB Info World
About EB & FAQ
EB Families Corner
EB Patient’s Photos & Memorials
EB Awareness

Subscribe Today!

Powered by
Easy Automatic Newsletter Lite v2.7.2

We’re Social!

Archives

Archives

Recent Posts

Epidermolysis Bullosa Awareness Memes
Epidermolysis Bullosa Awareness Memes
Epidermolysis Bullosa Awareness Memes
Epidermolysis Bullosa Awareness Memes
Ian Ziering EB Awareness Quote

Categories

Categories

Like EB Info World on Facebook

Butterfly Child: A Mother’s Journey

Butterfly Child

Follow Silvia's journey from the stillbirth of her first son, followed by a miscarriage, and the first 18 years of her son Nicky's life with Recessive Dystrophic Epidermolysis Bullosa.

My Other Books

Trending

My EB Awareness Radio Interview…
Views (7645)
EB and the Eyes
Views (259)
Common Misconceptions about EB
Views (242)
Fecal Hoarding and Constipation
Views (221)
Diet for Epidermolysis Bullosa
Views (151)
Insurance & EB
Views (138)
Wrapping Hands & Arms The ABC Way
Views (121)
Free EB Awareness Incredimail Letters
Views (119)
Epidermolysis Bullosa Awareness Memes
Views (118)
Epidermolysis Bullosa Awareness Memes
Views (117)
Epidermolysis Bullosa Awareness Memes
Views (116)
Epidermolysis Bullosa Awareness Memes
Views (116)

Support EB Awareness & Research

Debra of America

EB Research Partnership

Debra International

EBMRF

Scott Ward-Schofield Mem. Fund

Shop the EB Awareness Store

Get in Gear! There are always new items in the CafePress gift shop for EB awareness

Every week I add a new item in the Zazzle store as well! Check it out!

Thank You for Visiting!

EB Info World was Created on 11/20/1997 - Copyright 2018
Disclaimer

About Me

My name is Silvia and while I was born and grew up in Italy, I now live in Southern California (USA). I am Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted.
I started this website when Nicky was just an infant because I could not find any information about EB, so anything I came across I posted for the benefit of other parents and it grew from there. I still run this website (and its FB page) because I never stopped looking for information!
For more about me, you may visit my personal blog.
Thank You for visiting!

Tags

anemia Article awareness Babies bandages bandaging Basic Care book constipation Courage Under Wraps Debra's PCC Dental Health diet eb awareness eb awareness week Epidermolysis Bullosa Eyes genetics Guest Blogger Emily hands hand surgery hints instructions insurance medical care meme memorials New Parents Nutrition parents physical therapy quotes recessive dystrophic school Silvia's EB Tags Simplex special mommy chronicles state programs stories support tags tips Wayne Lemos What is EB? wounds

Listen to Butterfly Talk!

This website proudly produces Butterfly Talk. This podcast airs on BlogTalkRadio. It features education about Epidermolysis Bullosa, support and encouragement, tips and general information regarding advocacy and need for awareness.

Check Out Caregiving Podcasts at Blog Talk Radio with Butterfly Talk on BlogTalkRadio

Meta

Log in
Entries RSS
Comments RSS
WordPress.org

Visitor Counter