Teaching The World About Epidermolysis Bullosa

EB Info World

Teaching The World About Epidermolysis Bullosa

Home
Welcome to EB Info World
About EB & FAQ
EB Families Corner
EB Patient’s Photos & Memorials
EB Awareness

Links

(Visited 138 times, 1 visits today)

Search for:

Subscribe Today!

Powered by
Easy Automatic Newsletter Lite v2.7.2

We’re Social!

Butterfly Child: A Mother’s Journey

Butterfly Child

Follow Silvia's journey from the stillbirth of her first son, followed by a miscarriage, and the first 18 years of her son Nicky's life with Recessive Dystrophic Epidermolysis Bullosa.

My Other Books

My EB Awareness Radio Interview…
Views (993)
Life with Andy
Views (202)
Cards For EB Awareness Pt 2
Views (179)
Baby on Board
Views (125)
EB Is Genetic. Yes, It’s True!
Views (104)
Fecal Hoarding and Constipation
Views (102)
Wrapping Hands & Arms The ABC Way
Views (90)
EB wounds offensive to Facebook?
Views (82)
EB and the Eyes
Views (77)
Diet for Epidermolysis Bullosa
Views (77)
Free EB Awareness Incredimail Letters
Views (74)
Uncovering the pain…
Views (73)
Epidermolysis Bullosa Awareness Memes
Views (72)
EB Awareness Blinkies
Views (70)
My take-away from the Debra’s PCC in Orlando ...
Views (67)

Thank You for Visiting!

About Me

Hi!
I'm Silvia and I am an EB mom.
I was born and grew up in Italy, but now live in Southern California (USA).
I am Mom to 3 boys, 1 in heaven, 2 on earth.
My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted.

I started this website when Nicky was just an infant because I could not find any information about EB, so anything I came across I posted for the benefit of other parents and it grew from there. I still run this website (and its FB page) because I never stopped looking for information!
For more about me, you may visit my personal blog.
Thank You for visiting!

Shop the EB Awareness Store

Get in Gear! There are always new items in the CafePress gift shop for EB awareness

Every week I add a new item in the Zazzle store as well! Check it out!