Skip to main content

Epidermolysis Bullosa Info & Awareness

EB Info World

Epidermolysis Bullosa Info & Awareness

Home
Welcome to EB Info World
About EB & FAQ
EB Families Corner
EB Patient’s Photos & Memorials
EB Awareness

My Heart Belongs to My Child with EB

05 Mar 2017 by admin

0 Comment

My heart belongs to my child with EB
Epidermolysis Bullosa Awareness

(Visited 243 times, 2 visits today)

eb awareness

Post navigation

There is no Perfect Way to be an EB parent.

Search for:

Home
Welcome to EB Info World
About EB & FAQ
EB Families Corner
EB Patient’s Photos & Memorials
EB Awareness

Categories

Categories

Archives

Archives

Subscribe Today!

Powered by
Easy Automatic Newsletter Lite v2.7.2

Like EB Info World on Facebook!

We’re Social!

Worldwide EB Organizations

Children's Skin Disease Foundation
Cure EB
Debra International
Debra of America
EB Research Partnership
EBMRF
Epidermolysis Bullosa News
The Butterfly Fund

Butterfly Child: A Mother’s Journey

Butterfly Child

Follow Silvia's journey from the stillbirth of her first son, followed by a miscarriage, and the first 18 years of her son Nicky's life with Recessive Dystrophic Epidermolysis Bullosa.

My Other Books

Trending

My EB Awareness Radio Interview…
Views (253)
Fecal Hoarding and Constipation
Views (145)
Diet for Epidermolysis Bullosa
Views (129)
Wrapping Hands & Arms The ABC Way
Views (126)
Free EB Awareness Incredimail Letters
Views (119)

EB Info World was Created on 11/20/1997 - Copyright 2020
Disclaimer

About Me

Hi!
I'm Silvia and I am an EB mom.
I was born and grew up in Italy, but now live in Southern California (USA).
I am Mom to 3 boys, 1 in heaven, 2 on earth.
My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted.

I started this website when Nicky was just an infant because I could not find any information about EB, so anything I came across I posted for the benefit of other parents and it grew from there. I still run this website (and its FB page) because I never stopped looking for information!
For more about me, you may visit my personal blog.
Thank You for visiting!

Worldwide EB Organizations

Children's Skin Disease Foundation
Cure EB
Debra International
Debra of America
EB Research Partnership
EBMRF
Epidermolysis Bullosa News
The Butterfly Fund

Join The Crowd

Likes
Like us on Facebook
Followers
Follow us on Twitter
Subscribers
Watch us on Youtube

Shop the EB Awareness Stores

Get in Gear! There are always new items in the CafePress gift shop for EB awareness

Shop the Zazzle store as well! Check it out!

Visitor Counter

Visit Today : 151

Visit Yesterday : 172

This Month : 6000

This Year : 67722

Total Visit : 439502

Hits Today : 461

Total Hits : 1372169

Who's Online : 1

Meta

Log in
Entries feed
Comments feed
WordPress.org

© 2020 Silvia Corradin