• Welcome to EB Info World
  • About EB & FAQ
    • Information about EB
    • About EB Simplex
    • About EB Junctional
    • About EB Dystrophic
    • Clinical Pictures
      • Simplex
      • Junctional
      • Dystrophic
    • Articles
      • Bandaging instructions
    • Disclaimer
  • EB Families Corner
    • Share Your Story!
    • Personal Stories
    • Food & Recipes
    • Hints & Tips
  • EB Patient’s Photos & Memorials
    • Memorials
    • Simplex
    • Junctional
    • Dominant Dystrophic
    • Recessive Dystrophic
  • EB Awareness
    • Quotes
    • Link To Us!
    • Blinkies
    • Books
    • EB Awareness Wallpapers
    • Free Incredimail Letters
  • Home
Search for:

EB Info World

Teaching The World About Epidermolysis Bullosa

  2. EB Awareness
  3. Keep Calm for EB Awareness

Keep Calm for EB Awareness

 admin
 February 20, 2017
0 Comments

Keep Calm for Epidermolysis Bullosa Awareness

Email, RSS Follow
Pin It
(Visited 46 times, 2 visits today)

  Posted in EB Awareness, Quotes
  Tagged awareness
  Permalink

Post navigation

← EB Parent Encouragement
Always Hope ~ Epidermolysis Bullosa Awareness →

Menu

  • Welcome to EB Info World
  • About EB & FAQ
    • Information about EB
    • About EB Simplex
    • About EB Junctional
    • About EB Dystrophic
    • Clinical Pictures
      • Simplex
      • Junctional
      • Dystrophic
    • Articles
      • Bandaging instructions
    • Disclaimer
  • EB Families Corner
    • Share Your Story!
    • Personal Stories
    • Food & Recipes
    • Hints & Tips
  • EB Patient’s Photos & Memorials
    • Memorials
    • Simplex
    • Junctional
    • Dominant Dystrophic
    • Recessive Dystrophic
  • EB Awareness
    • Quotes
    • Link To Us!
    • Blinkies
    • Books
    • EB Awareness Wallpapers
    • Free Incredimail Letters
  • Home

We’re Social!

Visit Us On FacebookVisit Us On TwitterVisit Us On PinterestVisit Us On Youtube

Archives

Recent Posts

  • Epidermolysis Bullosa Awareness Memes
  • Ian Ziering EB Awareness Quote
  • Eddie Vedder EB Quote
  • There is no Perfect Way to be an EB parent.
  • My Heart Belongs to My Child with EB

Categories

Like EB Info World on Facebook

Follow EB Info World on Twitter

Tweets by @ebinfoworld

Listen to Butterfly Talk!

This website proudly produces Butterfly Talk. This podcast airs monthly on BlogTalkRadio. It features education about Epidermolysis Bullosa, support and encouragement, tips and general information regarding advocacy and need for awareness..
Check Out Caregiving Podcasts at Blog Talk Radio with Butterfly Talk on BlogTalkRadio

Please Support EB Research

This website proudly supports the work of the EBMRF. The EBMRF is unique in that the Foundation pays no salaries. While the foundation was founded to mainly support research at Stanford for a cure, they also help fund other research around the world.
Other organizations this website supports are the following:
- Children's Skin Disease Foundation
- Debra
- Jackson Gabriel Silver Foundation
- Heal EB
- Puck
- Scott Ward-Schofield Memorial Fund
- The Butterfly Fund

Shop the EB Awareness Store

Get in Gear! There are always new items in the gift shop for EB awareness

skin disorder best blogs badge

Tag Cloud

anemia Article Babies bandages bandaging Basic Care book constipation Courage Under Wraps Debra's PCC Dental Health diet dos and don'ts eb awareness eb awareness week Epidermolysis Bullosa Eyes food genetics Guest Blogger Emily hands hand surgery hints instructions insurance medical care memorials New Parents Nutrition parents physical therapy quotes recessive dystrophic school Silvia's EB Tags Simplex special mommy chronicles state programs stories support tags tips Wayne Lemos What is EB? wounds

Living with Epidermolysis Bullosa


Living with Epidermolysis Bullosa
compiled by Silvia C. & Brenda G.

Butterfly Child: A Mother’s Journey


Butterfly Child

Follow Silvia's journey from the stillbirth of her first son, followed by a miscarriage, and the first 18 years of her son Nicky's life with Recessive Dystrophic Epidermolysis Bullosa.

Follow this Blog

Follow this blog

Thank You for visiting!



This darling EB Boy, mascot of this website, was made for EB Info World by Kristina Wyatt of the EB Awareness website.
THANK YOU SO MUCH!!!

Site Meter
EB Info World was Created on 11/20/1997 - Copyright 2014
Sleeping Angel Creations
- All Rights Reserved - Disclaimer

Visitor Counter

000001
Visit Today :
Visit Yesterday :
This Month :
This Year :
Total Visit :
Hits Today :
Total Hits : 100
Who's Online :
plugins by Bali Web Design
Back to top

About Me

My name is Silvia and while I was born and grew up in Italy, I now live in Southern California (USA). I am Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted.
I started this website when Nicky was just an infant because I could not find any information about EB, so anything I came across I posted for the benefit of other parents and it grew from there. I still run this website (and its FB page) because I never stopped looking for information!
For more about me, you may visit my personal blog. Thank You for visiting!

Recent Posts

  • Epidermolysis Bullosa Awareness Memes
  • Ian Ziering EB Awareness Quote
  • Eddie Vedder EB Quote
  • There is no Perfect Way to be an EB parent.
  • My Heart Belongs to My Child with EB
  • EB Awareness
  • Always Hope ~ Epidermolysis Bullosa Awareness
  • Keep Calm for EB Awareness
  • EB Parent Encouragement
  • Valentine’s Day for EB Awareness
  • My Child has Courage

This Website Is Sponsored By

Meta

  • Log in
  • Entries RSS
  • Comments RSS
  • WordPress.org

Copyright © 2017 EB Info World. Powered by WordPress and Alétheia.