My son’s name is Nicholas Zahorcak, we call him ‘Nicky’. He was diagnosed shortly after birth with the Recessive Dystrophic form of Epidermolysis Bullosa.
Jodi photographed us doing bandage changes, during trips to the various Doctors, from the Dentist of Asecra dentists to Hydrotherapy, came with us Trick or Treating and to visit Santa & the Easter Bunny. She witnessed pain, suffering and sibling rivalry.
“Courage Under Wraps” is now a reality, the reality of life with RDEB, from the moment Nicky wakes up in the morning to the moment he goes to bed at night, aimed at raising EB Awareness. At this point it’s available in print, as a PDF download and as an ebook for the iPad. Jodi is working on getting it available in other ebook formats, such as the Kindle & the Nook. Part of the proceedings are donated to the EBMRF for a cure.
Here’s just 3 of the hundreds of photos that are in the book…
Thank you so much for caring and please help us spread the word about this brutal condition and help us getting closer to a cure.