Many patients with EB have Facebook pages to gather support, prayers and to share their struggles and achievements. My son does as well. I didn’t make it, a dear photographer friend, who is documenting his life, made it for us.
I scoured Facebook for other pages and this is the list I came up with. Feel free to add the link to ones I may have missed in the Facebook Comment plug in below this post.
THANK YOU & HUGS!