Meet The Patients

25 Dec 2010 by

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In the late ’90s and early 2000s this website had a recurring ‘featured’ patient. While we no longer do that, the featured patients and their stories are still available to view. God Bless them all. Brogan Ayre Rachel Barber Christopher Bradley Jeffrey Thomas Bradley EmmyLou Carouthers  Lizie Fernandez Jonathan Gionfriddo Sophia Maria Litynski Dennis Parlevliet…

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Guidelines for parents

25 Dec 2010 by

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Guidelines for parents on the play and development of the child with Epidermolysis Bullosa  This is the transcript of a little booklet distributed by DEBRA UK by Joyce Stebbings Thank you Brenda for typing this for us!  INTRODUCTION As parents with a child who has just been diagnosed, as having Epidermolysis Bullosa it is difficult at…

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