Category Archives: Blog

Being Different

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By Silvia Corradin From the Book ‘Special Mommy Chronicles‘ (only $2.99 for the Kindle!) Being Different      On most days the furthest thing from my mind is my child being different from any other. We laugh, play together, even bandage changes are so routine it feels like a ‘normal’ thing to do. I don’t have…

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What Do You Do?

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What do you do when your child with EB becomes a teenager with EB and starts asking you the really hard questions about life? When my son was small I could gloss over the answers with a positive saying or a humorous comment. Not so as he becomes a young man and wants real answers…

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Thanksgiving Wishes

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As I sit down to write this, the Turkey is already in the oven. Whether you are entertaining in your own home or being someone else’s guest, remember to have a heart full of gratitude. That is of course the essence of this holiday. I urge you all to take a few minutes to create a…

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Join us on Facebook

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Many patients with EB have Facebook pages to gather support, prayers and to share their struggles and achievements. My son does as well. I didn’t make it, a dear photographer friend, who is documenting his life, made it for us. I scoured Facebook for other pages and this is the list I came up with.…

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A couple of new EB Awareness Tags…

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  Just a couple of images I threw together today. Feel free to take and use in any way you like. I am working on a few more, I will post them when they are ready! Blessings…

A Journey Into Motherhood

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From the book “Living with Epidermolysis Bullosa” (ONLY $2.99 for the Kindle!) This story was written in early 2007. Nicky is now nearly 16 (his birthday is in late November). Follow Nicky’s Caringbridge Blog at http://www.caringbridge.org/visit/nickyz (you need to log in to view it, but it’s free). A Journey Into Motherhood  By Silvia C. silviaskingdom.com California, USA…

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EB Awareness Week

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I posted this on my blog last year to commemorate EB Awareness Week. These feelings haven’t changed, Nicky is just one year older, he will turn 16 on November 25th.  If you know an EB mom and if you do NOTHING else for this EB Awareness week, give her some kindness today. *********************************** The last…

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Resources

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There are many resources to assist with various things needed by EB families or other families in need. Here’s a list of some we’ve found, please let us know if there are others we might have missed by entering the link or links in the Facebook plug-in below this post! Some of these links are…

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EB Awareness Tags

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EB Awareness is upon us (the last week of October) and I wanted once again share some tags you can use to spread awareness. These tags were either made by yours truly or were made by others who wanted to help the cause. Please feel free to use these images as you wish. Simply click on the…

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The Healing Power of Humor

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By Silvia Corradin From: Special Mommy Chronicles  (Unpublished Column from July 6, 2006)      The calendar in my computer room just taught me something today… it said: “A cheerful heart is good medicine.” King Solomon (Proverbs 17:22). It’s so true, too. After my son died and for many years after Nicky was born, I was incapable…

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