This Valentine’s Day GO RED for Epidermolysis Bullosa Awareness
My Child has Epidermolysis Bullosa Courage
Of course I can change bandages, deal with insurance companies, lift wheelchairs into my trunk, handle dozens of medications, fix g-tube machines and keep up with my child’s appts with all his doctors… while baking cupcakes, helping with homework and make sure we don’t run out of mil, I just rather stay away from the…
I am a child with Epidermolysis Bullosa My skin is extremely fragile. My body is wrapped in gauze to protect my skin and allow the wounds to heal. My condition is genetic and is not contagious. Most importantly, I need your unconditional love, your support & a CURE.
If you support children and adults with EB (Epidermolysis Bullosa) Please *Like* this picture. We NEED your support!!
Beagle Hugs for EB Kids – Please support Epidermolysis Bullosa Awareness
Wanted: Cure for Epidermolysis Bullosa while our children are still alive. Reward: Priceless
You know you’re an EB Parent when… you realize you could get a job writing appeals letters to the insurance.
Originally posted by Silvia on her blog: http://blog.silviaskingdom.com/?p=852 When you know more than the real doctors do about your child. When you consider internet friends you’ve never met to be some of your best friends. When you think it’s a good day if you don’t see any blood. When you get asked at least once a week…