EB Parent Encouragement

Having a child with EB is tough. You can survive if you can let attitudes & comments from others roll off you, knowing that your journey as an EB parent is important.
You are your child’s voice, their nurse, their advocate but most of all their parent, their heart & soul.
YOur journey will be tough, but the smallest milestones are huge triumphs & you will experience many heartfelt rewards. Rewards that you will hold in your heart forever.
You are an EB parent and YOU ARE AMAZING! Be kind to yourself!

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Wonder Woman EB Mom

Of course I can change bandages, deal with insurance companies, lift wheelchairs into my trunk, handle dozens of medications, fix g-tube machines and keep up with my child’s appts with all his doctors… while baking cupcakes, helping with homework and make sure we don’t run out of mil.
I’m Wonder Woman Dammit!!
Support EB Parents!
Epidermolysis Bullosa Awareness