Author Archives: admin

Please Watch!

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Jodi Champagne, who is the photographer who documented my son Nicky’s life with Epidermolysis Bullosa, was recently interviewed by an online video magazine and this is the interview– read this. Get the Book exclusively at BLURB http://www.blurb.com/b/5024440-courage-under-wraps and on iTunes! https://itunes.apple.com/us/book/courage-under-wraps/id803462653?mt=11

EB Mom Encouragement

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Here’s just one of my EB Awareness graphics. This quote is available as a Sticker you can purchase in my Zazzle store CLICK HERE to see it! Proceeds go to the costs associated with the upkeep of this website. Anything extra goes into a special fund to help with medical expenses for my son Nicky, who has Recessive…

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Keep Calm for EB Awareness

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Here’s just one of my EB Awareness graphics. This quote is available as a Magnet you can purchase in my Zazzle store CLICK HERE to see it! Proceeds go to the costs associated with the upkeep of this website. Anything extra goes into a special fund to help with medical expenses for my son Nicky, who has Recessive…

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EB Awareness Tags by Silvia Pt 3

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Here’s part 3 of more EB Awareness Tags I made. Please feel free to share and use them for Epidermolysis Bullosa Awareness in any way you like. Click on the image for a bigger version, right click to save. Love & Light! Silvia