Author Archives: admin

Wonder Woman EB Mom

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Of course I can change bandages, deal with insurance companies, lift wheelchairs into my trunk, handle dozens of medications, fix g-tube machines and keep up with my child’s appts with all his doctors… while baking cupcakes, helping with homework and make sure we don’t run out of mil, I just rather stay away from the…

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I am a Child with Epidermolysis Bullosa

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I am a child with Epidermolysis Bullosa My skin is extremely fragile. My body is wrapped in gauze to protect my skin and allow the wounds to heal. My condition is genetic and is not contagious. Most importantly, I need your unconditional love, your support & a CURE.

Butterfly Child: A Mother’s Journey

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This is my book!! Butterfly Child: A Mothers Journey by Silvia Corradin  “Children with EB are called “Butterfly Children” because EB is described as a skin condition in which the skin is so fragile, it is like butterfly wings.” Like any mother, Silvia never imagined she would have to to bury her first son, Alex, who…

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